rapid progression

  1. B

    research

    Hi, It has been suggested I introduce myself so since I am a moron re; technology, here I go. My husband had a shower stroke (six blood clots) in July, 2011. When he experienced left arm weakness, we just assumed it was stroke related. When his knee flew upwards at the dr' office, I knew...
    • boston
    • Thread
    • als brain cure diagnosed emg mnd mobility progression rapid progression research shower speech stroke technology weakness wrong
    • Replies: 4
    • Forum: New members
  2. D

    Deb

    My sweet sister passed this morning. One year and two months after diagnosis and a rapid progression. In the end she went 13 days without food and just sips of water. We couldn't get her comfy at home, and the drugs weren't helping. We transferred her to inpatient hospice (her decision) where...
    • Debs sis
    • Thread
    • diagnosis drugs food heart hospice pain progression rapid progression
    • Replies: 14
    • Forum: In memory of
  3. R

    Experience with Brain Injury after Diagnosis?

    Hi All, I am new here and looking for people who have had a similar experience as I have. My father was diagnosed with ALS in June 2013, and has had a somewhat rapid progression of the disease. At the time of diagnosis, he had lost function in his left hand and was walking with a cane, but...
    • rjpaul
    • Thread
    • ability als brain brain injury diagnosed diagnosis diet eating father fell new here nursing home progression questions rapid progression research speech surgery wheelchair work
    • Replies: 3
    • Forum: General discussion about ALS/MND
  4. H

    My life, my love, my husband

    My husband was DX on October 2 with ALS, predominate lower motor damage. He is 33 years old and we have three babies. My heart is broken, shattered in a million pieces and I can't seem to pull myself together. Our children are ages 4, 2 and 1. I'm angry at the world. I am angry at GOD, I have...
    • Hope091006
    • Thread
    • advice als angry brain children clinic cramps dying emg fasciculation fingers health heart husband ivig life lift love mmn mri muscles neurologist pma progression rapid progression reading story symptoms wanted weakness work worry
    • Replies: 10
    • Forum: Newly diagnosed
  5. M

    Hard decision

    My husband has been in and out of the hospital the past few weeks because of anxiety/mental issues. He had been on some anxiety meds but was still yelling a lot of nonsense mainly at night when we were trying to sleep. Our clinic advised us to take him to the ER to be evaluated. They...
    • mariasb
    • Thread
    • ability als anxiety clinic dementia dying father feeding goodbye guilt hospice hours life meds morphine night please help please help me progression rapid progression sleep support symptoms work worry
    • Replies: 11
    • Forum: ALS and frontotemporal dementia
  6. L

    My brother has pneumonia

    My sweet brother is in the hospital with pneumonia after aspirating on his own saliva last night. He did not want visitors tonight, but my thoughts are with him. I pray that he is not in pain or distress, but I don't know. I hope to see him tomorrow. Much has changed in the past month...
  7. K

    Diagnosed last week

    Hello, My 79 year old mother was diagnosed with ALS last week. Her problems began last fall when she found she could no longer turn the key to start her car. The symptoms were just in the right hand. She is not one to go to doctors, and it was last December before I could get her to go to...
    • Kim C
    • Thread
    • als arm bed breathing chair clinic diagnosed family father muscle neurologist problems progression rapid progression reading stress symptoms testing worried worry
    • Replies: 2
    • Forum: Newly diagnosed
  8. K

    MS Diagnosis in question due to rapid progression

    I am writing just the facts. Not my opinion or feeling. Just the facts. March 2011 Charlie horse in left leg waking me at night April 2011 strange gait and muscle twitching, fatigue, Brain MRI shows lesions atypical for MS, start using cane for assistance. June 2011 MS neuro orders more...
    • Kerri2012
    • Thread
    • advice afo als arm weakness brain children diagnosis emg fatigue foot foot drop health mental health mri muscle muscle twitches muscle twitching power power wheelchair progression progressive weakness rapid progression reading scooter stop working support swallowing swallowing issues symptoms treatment trial twitches twitching walker weakness wheelchair young
    • Replies: 12
    • Forum: Could this be ALS?
  9. J

    Pma to mnd

    I saw my primary neuromuscular doctor today for an eval and a really long discussion of where I am at. Basically she said I can't be called PMA until 2+ years of LMN symptoms from when they first started. I will be 2 yrs in Sept. I do have a mild hyperreflexia that I've had from my first eval...
    • jb63
    • Thread
    • als atrophy biopsy clinic equipment heart hyperreflexia ivig life mnd pma pressure problems progression rant rapid progression rilutek sad stroke swelling symptoms umn weakness work
    • Replies: 4
    • Forum: General discussion about ALS/MND
  10. L

    Stay on the trial?

    My husband has been on the Ceftriaxone trial for 15 months. He is a slow progressor but definitely getting weaker. Using a walker now and getting his braces this week. Very slow eater and very fatigued. He wants to go off the trial. He has an appt to have his hickman taken out in 3 days...
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