rapid progression

  1. D

    Scared and Overwhelmed

    Hi. My wife, Rhonda was diagnosed with ALS on December 2, 2008. So far, this has been very frightening for Rhonda and the rest of the family as well. In mid October, Rhonda could do pretty much anything she wanted with no hint of any serious problems. We went fishing, metal detecting, and a...
    • Dennis & Rhonda
    • Thread
    • als arm chair cramping diagnosed family fingers hope information mri neurologist pain problems progression rapid progression scared support surgery symptoms test testing trip vacation wanted wheelchair work
    • Replies: 23
    • Forum: General discussion about ALS/MND
  2. BethU

    Oh, goody. Another MG symptom.

    Sorry ... this is going to be a long one. As I’ve reported here ad nauseum, my bulbar symptoms started with both slurred speech and blurry vision, sometimes double vision. It was the double vision among other things that led to my mis-diagnosis with myasthenia gravis before I was diagnosed with...
    • BethU
    • Thread
    • acetylcholine als arm autoimmune biopsy bulbar bulbar onset clinic clinical diagnosed diagnosis fingers keyboard medicine mestinon muscle muscle biopsy myasthenia gravis neurology onset progression rapid progression slurred speech speech steroids stress symptom symptoms testing twitch vision
    • Replies: 33
    • Forum: General discussion about ALS/MND
  3. S

    Rapid Progression

    This is not a good day, This disease is Progressing faster than we expected, within 7 days he has gone from being semi self sufficient to not even being able to brush his own teeth, The Neuro at the ALS clinic at OSU, moved his next appointment from November to next week because of the rapid...
  4. W

    Afraid to sleep

    My husband was diagnosed with ALS Oct of last year. He has had a rapid progression. He is terrified to go to sleep, he is afraid he will not wake back up. He will sleep while someone is up and keeping an eye on him during the day. The problem is, is that I need to sleep sometime too and Ive...
    • whimsy_1971
    • Thread
    • advice als back choking confused cry diagnosed eye morphine night problem progression rapid progression sleep sleeping pills
    • Replies: 6
    • Forum: People with ALS (PALS)
  5. D

    Progression too fast

    I don't know where to start... my dad has bulbar symptoms quite advanced and up to now it's all affected him from the waist up. Now he has fallen twice in 2 days and I dread that this means a rapid progression to his legs. I feel so sad and I can't take this philosophically as I have done with...
  6. J

    Happening too fast

    Hello All, I have only posted once before on this a month or two ago but I read everyday, as you are all down to earth and honest. My mother in law was diagnosed in Jan (1st. symptoms started last March) Anyway, the social worker I spoke to said that she has als that is taking her with a...
  7. D

    Information needed, PLEASE!

    My wife has ALS. She has had it for 18 months. She has a very rapid progression. At this point, she is confined to a wheelchair to move around the house, she only gets out of bed to use the bathroom or shower ( which i have to help her with both) she can't speak anymore, she can't swallow...
    • dukesnider
    • Thread
    • als bed can't swallow dynavox feeding feeding tube finger hope information meds night progression rapid progression shower swallow wheelchair
    • Replies: 4
    • Forum: Current caregivers
  8. P

    Concerned about twitches and progression of ALS

    Last January I started to get a weird feeling in my nose and then about 3 days later started to get muslces twitched in my leg. It quickly progressed to having twitched all over my body. I noticed that it doesn't occur when I am doing anything like walking or running etc. But if I lay in bed...
    • porkchop
    • Thread
    • als back bed concerned nose progression rapid progression running symptoms twitches
    • Replies: 4
    • Forum: People with ALS (PALS)
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