progression

  1. Finndoodle

    Fast progression

    My husband was diagnosed with Bulbar onset in May 2024. We believe looking back he had symptoms a year before. We are 6 months since diagnosis and the choking has slowly progressed and I believe Nuedexta, prescribed for the pseudo bulbar effect, has helped with the choking, his face seems like...
  2. P

    Thoughts on ILB, which may slow ALS progression, per data from small clinical trial

    Treatment with a high dose of ILB, an experimental injection therapy being developed by Tikomed, was well tolerated and appeared to slow the progression of amyotrophic lateral sclerosis (ALS) in a small clinical trial in the U.K. That’s according to data from the exploratory Phase 2 study...
  3. L

    Update and progression of symptoms.

    Hello everyone I already posted several months ago and I always thank the members of this group for taking the trouble to reply. I am almost 22 months since the onset of symptoms and my symptoms continue to progress. I've had 3 emg's including the last one a year ago now. I was 10 months after...
  4. DW7186

    Infection and MND progression

    Hi, I originally dismissed my left arm weakness after an emergency surgery for a breast abscess back in 2019. I went on to be diagnosed with flail arm syndrome in Oct 23. I've had a recurrent abscess in the same place and another emergency surgery a few weeks ago and was on IV antiobiotics...
  5. M

    More rapid progression?

    This disease is so frustrating. My mother was diagnosed with PLS, symptoms started a little less than 3 years ago. She is falling more regularly now. Three falls in the past two weeks. Trouble swallowing pills, more confusion, trouble raising her arms, and hoarse voice. She is resisting a...
  6. ChesterB

    Fasiculations and Progression

    I'm now in my 5th year since the onset of symptoms, and 4 years since official diagnosis. My main symptom has been muscle fasiculations in my limbs. At this time my muscles atrophy has progressed quite a lot, I've lost about 40 lbs. in the last year, and just in the last few days I've noticed...
  7. R

    Fast progression

    How do people deal with fast progression? I was still independent in Oct22 with an early 40 alsfrs score but been dropping 3pt per month and now i am like a quadriplegic with a peg and almost non verbal (wheelchair bound ). Fyi im only 37 and was expecting maybe ill progress slow based on the...
  8. I

    Fast progression?

    My PALS feels his progression is fast. In November 22 when he was dx, he had trouble walking and his weakness in his arms, muscle twitches and tremors. Today he can still walk, but it’s gotten slow and he had a fall recently so he uses a walker. His neck is starting to droop and his posture is...
  9. Nikki J

    Research on progression rates

    https://pubmed.ncbi.nlm.nih.gov/36617536/ there is a free access to the full paper. Look at top right of linked page
  10. M

    Progression

    I knew that my walking speed has gone down another notch, but today I got an unpleasant surprise. I was reaching farther into my 19yo's closet to see what pizza boxes, etc., he was hiding under a well-draped jacket on the floor. I used to be able to bend at the waist, pick something up from...
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