progression

  1. M

    ALS vs. Lyme's

    New to this forum and not sure where to post. Diagnosed with ALS back in July 2016 at Hopkins through EMG testing. I am experiencing muscle wasting in my hands and fasciculations. I have many Lyme's symptoms as well such as ringing in the ear, dental issues, burning in hand and feet, night...
  2. L

    Coughing and clearing throat

    Hi all, once again a non communicative husband with average to a above average progression, first diagnosis 2014 is now overheard coughing and clearing throat. May I gently inquire if these are signs of bigger symptoms to come? If so what could those be? Thank you. Lab
  3. H

    Drug trial

    I was diagnosed in March of this year. Onset August 2015. Monday I will start participation in a drug trial for a drug that has been used to treat rheumatoid arthritis. The hope is that it will slow progression. I was tested for inflamation markers which were positive to allow me to...
  4. N

    Immense Hope

    Hi Everyone, It's been awhile since I've last posted. I've been muddling through what I now know to be the "7 stages of grief". I see a therapist weekly and am on anti-depressants. While not a "cure all" it has definitely helped. My PALS is doing good on his Tirasemtiv clinical trial. I've...
  5. L

    Waking up in the night

    Curious to understand the meaning if any behind my husband waking up around 2-3 or 4 in the night? He was diagnosed in 2914 still fully functioning with all typical progression attributes occurring. From the forum I am thinking to myself it could be his breathing. But when asked if he wondered...
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