progression

  1. C

    6 months in, new symptoms

    I posted to this forum a few months ago after my symptoms started. At that time I had neck stiffness and pain, body wide twitching but constant in my lower legs and some swallowing problems. Symptoms have come and gone over the past 3 months. My neck pain and stiffness dissipated. My...
    • Charles22
    • Thread
    • back choking clean emg emg fatigue foot foot drop muscle muscle fatigue muscles neck pain pain problems progression running slow progression stiffness swallowing swallowing issues symptom symptoms thumb twitching weakness
    • Replies: 4
    • Forum: Could this be ALS?
  2. R

    Advice on symptoms - "weak" leg & twitching

    Hi All, Like many others on here, I have tried to avoid posting for as long as possible but would really appreciate your views on my symptoms based on your experiences. From what I have read, this site is a tremendous support and your are all very generous with your time. My summarized story...
    • Rojo
    • Thread
    • abdomen ability advice als atrophy brain burning diagnose emg exercise fatigue fingers heaviness ignore muscle muscle fatigue neurologist progression shaking stiffness story support symptoms twitching update
    • Replies: 21
    • Forum: Could this be ALS?
  3. C

    A Complicated Case

    Good afternoon. My name is John Marburger. I am 42, a retired Naval Officer and cancer survivor with some oddities at that go along with it. Apologies in advance for the length of this post and MANY thanks in advance for those of you reading or responding to it, especially those fighting this...
    • coinlieutenant
    • Thread
    • als autoimmune back bfs brain clinical cramping diagnosis early emg eyes family family history fasciculations holiday military mri neurologist pain progression stem cell story symptoms twitches twitching weakness
    • Replies: 4
    • Forum: Could this be ALS?
  4. E

    Balance issues

    Hello everybody, I have a question that I felt like couldn't be answered in the Stickies. For about 3 weeks I have had issues where I am walking, and if I do a quick turn on one leg, I stumble a bit. I have gotten out of bed at night to have my legs shake uncontrollably, or I stumble around the...
    • Ericalyn
    • Thread
    • als als? balance bed clinical denervation early emg familial familial als fasciculation issues military mri muscle muscle pain neurologist night pain progression symptom symptoms twitches twitching weakness work young
    • Replies: 23
    • Forum: Could this be ALS?
  5. K

    FVC at diagnosis and progression rate

    My mom’s FVC was 50% during her initial respiratory evaluation at the ALS Clinic at Mayo. Because of this, she is not a candidate for any clinical trials. She will be receiving a cough assist and trilogy. Does her diminished pulmonary function indicate ALS progression is aggressive? She is...
    • Kellbellab
    • Thread
    • als bulbar bulbar onset candida clinic clinical cough assist diagnosis fvc onset progression respiratory trilogy
    • Replies: 2
    • Forum: Newly diagnosed
  6. T

    Dad Dancing Again in Heaven

    My Dad slipped away peacefully on Wednesday, Jan. 30. ALS took his ability to move, to swallow, to speak, and finally to breathe, but it didn't take his joy or his strong faith. Diagnosis was the end of December 2017, though he'd had symptoms for at least two years prior. Possibly...
    • ThisPresentMoment
    • Thread
    • ability als choking dad early family food hospice life meds problems progression swallow symptoms wanted
    • Replies: 24
    • Forum: In memory of
  7. K

    Also...Slow or Fast Progression?

    Karen, I must admit I am wondering the same thing...slow, fast, average? I know today is a gift, we should live each day and day by day, but my wondering has to do with decisions that need to be made. My PALS was diagnosed in January 2018 with symptoms becoming very noticeable in August 2017...
    • katygal
    • Thread
    • alsa breathing chair clinic diagnosed equipment feeding feeding tube fvc hospice lift money progression pwc symptoms trilogy
    • Replies: 6
    • Forum: General discussion about ALS/MND
  8. K

    Slow or fast progression?

    Hi All, My dad was officially diagnosed with als in March 2018 although he was exhibiting signs as early as May 2017. I remember going to the neurologist for the diagnosis and my dad walked there. Slowly but he walked. Now he can barely walk in a walker. His left side is much stronger than his...
    • karzy81
    • Thread
    • als arm breathing bulbar dad diagnosed diagnosis early eating grace lift neurologist progression swallowing symptoms test walker
    • Replies: 5
    • Forum: General discussion about ALS/MND
  9. M

    Likely Not ALS - that's good news!

    2 prior EMGs (Nov & Dec) with neurologist #1 noted chronic denervation, resulting in a "Possible ALS" diagnosis. First EMG (Aug) did not show any issues. Dr #1 was clear that lack of muscle weakness/atrophy after 9 mos of continuous fasciculations and cramping was encouraging. Next EMG in 3...
    • markp99
    • Thread
    • 2nd opinion als atrophy bfs chronic denervation clinic cramping denervation diagnosis fasciculations heart medical muscle muscle weakness neurologist possible als progression symptoms testing twitching weakness
    • Replies: 6
    • Forum: Could this be ALS?
  10. S

    Genetic testing??

    My husband was dx. In dec. 18 we have very little past family history due to the fact that his maternal grandfather was adopted with no records and his paternal family have all died at young ages ( under 50) except for his father as of now who is 48. Reed is 28 and I am just curious if we...
    • samnikolep
    • Thread
    • back balance cry depression eye family family history fasciculations foot genetic genetic testing increase pain problems progression research sad symptoms testing vision vitamin d weakness young
    • Replies: 2
    • Forum: Newly diagnosed
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