I was diagnosed with PBP a year ago this week. I frequently check in and read most of the posts for the day. It just dawned on my husband and I that none of the four neurologists I have seen have mentioned physical therapy or drugs that might delay the progression of this beast.
My MIL started showing symptoms in June 2018. It started with back pain and slurred speech and progressed from there. In August she needed a cane to walk, and by September a walker. We had began seeking answers from her PCP and a Neurologist who couldn't give us any answers. The only thing...
Having a difficult day. More progression and the grief that goes with every loss is hard to deal with. I know I m depressed but I m still handling everything. My pals depends on me and I want to be strong for him, and be the caregiver he deserves. I m frightened and overwhelmed, it is all...
I have been a longtime lurker. I have been tempted to ask questions, but ultimately I decided to wait. And I waited for a long time. Having been finally diagnosed, I will let you know how everything began.
In the spring of 2016, I started noticing some problems with my left...
Hi all, I'm a 25 year old male from Detroit and my dad is 53 years old. This post is about my dad.
my dad has plenty of other health problems that make weightlifting harder for him, including arthritis in his knees, a bone spur in his back which causes a lot of pain and some...
I want to thank you all in advance, and let you know that I will not dispute your suggestion (and only welcome it) if you don't think ALS is a possibility in my case. I also want to let you know that my thoughts are with each of you that have been diagnosed or have had a family member diagnosed...
It's certainly great to be a part of this group of experts - and I do appreciate all the helpful advice I've received and read in past messages on various topics. The knowledge and wisdom here is awesome and I've learned a lot! So, where else would I go when I can't figure...
Hi all. Here's my story. Please let me know what you think. Thanks in advance.
I am 55 female. Started having finger, hand, and toe cramping at least 17 years ago. I also had body wide twitching. Was worried cuz I was due to have a kidney transplant surgery with general anesthesia and was...
Hello, and first of all, I wish you all the best you can all get for 2019 including love and peace in your souls.
I posted here a few weeks ago, as I was concerned with a myriad of Symptomes including feeling of weakness in arm and one leg, beginning of fasciculations, a number of sensory...
Anyone else have the experience of their PAL losing their sense of taste? Today I asked my mother how she liked the new seedless jam I got her. She said she had no idea. She can't taste most of her food. She did not have bulbar onset, but she is starting to have more bulbar...