• Memoriam wall
    • We've created a memoriam wall to remember our friends
    • If you know someone that battled ALS, please add them here
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ThisPresentMoment

Distinguished member
Joined
May 30, 2018
Messages
123
Reason
Lost a loved one
Diagnosis
12/2017
Country
US
State
MN
My Dad slipped away peacefully on Wednesday, Jan. 30. ALS took his ability to move, to swallow, to speak, and finally to breathe, but it didn't take his joy or his strong faith.

Diagnosis was the end of December 2017, though he'd had symptoms for at least two years prior. Possibly progression was so quick because he was older than most PALS at diagnosis, (in his 70s), though he'd been healthy and active until then.

The end came quicker than we imagined. We had only gone on hospice last Friday. He was having problems with increased secretions. They recommended increased comfort meds which did stop him from choking and made him more comfortable. His body was not tolerating food. He began to become less responsive.

Tuesday evening we told him it was OK to go. The most important thing to us was to follow his wishes. We also did not want to see him suffer. Wednesday morning they recommended we contact family. We thought we might have a few days, but he slipped away peacefully with us at his bedside in early evening. We never had to make the decision to remove the mask, and for that I was thankful.

I wanted to give some details of how it went for one family. Of course, everyone is different.

I can't thank everyone on the forum enough for helping us through this past year. We would never have kept up with the relentless pace of the progression without you. Thank you for helping us, help him, live the best life that he could in the time that he had.

He was a very good man. Friends would ask my parents to adopt them. He spoke into so many peoples lives. He was loving and supportive. I was blessed to be his daughter. He would want you to know that you are loved and beautiful. I can't wait for you to meet him someday in eternity.
 

ShiftKicker

Moderator
Joined
Mar 16, 2015
Messages
2,366
Reason
DX UMND/PLS
Diagnosis
06/2015
Country
CA
State
BC
Thank you so much for sharing. You paint such a loving and vivid picture of your dad and his kindness. Your love and care for him has shone through in every post you've made here and your drive to provide him comfort and dignity is an absolute tribute.
Peace to you and your loved ones.
 

lgelb

Forum Supporter
Moderator
Joined
Nov 5, 2009
Messages
7,522
Reason
Lost a loved one
Diagnosis
09/2009
Country
US
State
WA
I am very sorry for your loss, though glad that he went out on his terms. You did all that you could, when there was something to do. When there was not, because you understood that, he was able to slip away in peace; that is everything.

Best,
Laurie
 

wishmobbing

Senior member
Joined
Dec 5, 2017
Messages
718
Reason
Lost a loved one
Diagnosis
07/2017
Country
DE
State
Germany
I'm so sorry you had to lose this wonderful man to the beast. You sound pretty much at peace with how it all went and I hope that's true. You and your family did great. Hugs to you!
 

affected

Guru status reached
Joined
Apr 26, 2013
Messages
11,772
Reason
Lost a loved one
Diagnosis
05/2013
Country
OZ
State
home
I'm so very sorry for your loss - what a beautiful tribute to a wonderful man. This disease seems to take the very best from us.
 

Jlynn

Distinguished member
Joined
Mar 16, 2016
Messages
386
Reason
Lost a loved one
Diagnosis
12/2015
Country
US
State
NH
Sending you my sincerest condolences. You have been a wonderful daughter. Lean on your faith to get you through this difficult time. Hugs to you.
 

Nikki J

Moderator
Joined
Mar 22, 2012
Messages
7,581
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
I am very sorry for your loss. I am glad it was peaceful and you were there.
 

Narrowminded

Very helpful member
Joined
Apr 30, 2016
Messages
2,474
Reason
Lost a loved one
Diagnosis
07/2007
Country
US
State
PA
This I am so very sorry for your loss. You were an amazing daughter and CALS. Yes, there will be a lovely reunion one day. Dad is flying free.

Hugs
 

pittsburghgal

Distinguished member
Joined
Jan 7, 2016
Messages
494
Reason
CALS
Diagnosis
11/2011
Country
US
State
PA
I am so sorry for your loss of your Dad. Your tribute to him is beautiful. I am so glad he is free now and that his passing was peaceful.

You and your family are in my thoughts and prayers.

Sharon
 

Jrzygrl

Senior member
Joined
Feb 14, 2017
Messages
545
Reason
CALS
Diagnosis
08/2014
Country
US
State
NJ
So sorry for your loss. He sounds like a wonderful man. I am glad that he did not suffer in the end. He is now free. Wishing you peace.
 

katygal

Member
Joined
Jul 24, 2018
Messages
25
Reason
Lost a loved one
Diagnosis
01/2018
Country
US
State
TX
I am so very sorry to hear of your dad. You all are in my thoughts and prayers.
 
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