progression

  1. B

    Advice needed from community. Medical mystery

    Hi all, https://www.alsforums.com/forum/do-i-have-als-als/41467-clean-clinical-exam-now-gait-abnormality.html Above is a link to my story till about May/June 2018. I have no idea what’s wrong with me, so I’m posting here looking for direction. I have seen multiple neurologists about my...
  2. Tedstehr

    B12 Injections

    Hi all! I have been busy renovating my daughter’s newly purchased apartment (in a strictly advisory role) and haven’t been posting much. But I would like to draw your attention to positive results I have had injecting B12 daily. I bought some insulin needles and I inject once a day or so. I am...
  3. opusensemble

    I guess this is for real

    Dear friends, My story so far was an impressive story of fight for survival. 5 years ago I had a severe adverse reaction to an antidepressant and became bedridden and in extreme suicidal agony for 4 long years. My research was too incredible and extense to condense in a thick collection of...
  4. S

    Follow up emg - already diagnosed...

    Please help me understand why a person who has been diagnosed with als needs a follow up emg a year later? Obviously the dr wants to check for progression ---are there any other reasons??? Sassy
  5. V

    It's been 3 years

    This month marks 3 years since my husband was diagnosed. He is still progressing very slowly, for which I am thankful. His left hand is completely gone, his left arm is weak, and he tells me his right grip is getting weaker. He can still walk, talk, and eat. My caregiving role is currently...
  6. N

    Stem cell progress?

    hello, just curious if anyone is in a stem cell trial or know someone who is and how the progress is. Is it working? I know recently there were a lot of ALS centers in California that were accepting candidates for the trial and really haven't heard good or bad news about it. I had a friend who...
  7. C

    Anyone have stomach twitching and shortness of breath?

    My Dad recently has been having an increase in twitching in his stomach as well as feeling like he can’t breath out fully. It’s only been happening the last two days and last week he was at the ALS clinic for his 3 month check up and they said he had no progression. Although they didn’t do a...
  8. C

    EMG on untwitching muscles

    Hello, I went to a neurologist who suggested I had ALS based on my signs and symptoms. (Constant muscle fasciculations, positive Babinski sign, left side weakness and atrophy -atrophy in left hand and right around and now both calves- slurred speech and cramps where my muscles get stuck. Also...
  9. BlsdMama

    And I'm back...

    Not without a fuss, mind you. Mayo found an antibody (glycine receptor antibody) and wanted to try several treatments for limb variant stiff person syndrome. Alas, nope. I felt the fourth trial improved my balance (quite a lot actually) but they can see no improvement, plus, everything has...
  10. X

    Early progression

    Hi Guys, my ALS has been very slow and even static for a period of over a year. But in my recent tests, early neurodegenerative changes have shown up all over my body. I guess I'm trying to figure out if I'll start collapsing all together or I'll experience periods of deterioration in various...
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