MomofTwo
Thanks to this great suggestion, David has created this special section for PALS who are living full and valient lives, with courage and serenity. If you know of someone who deserves to be recognized for their own story of hope, please post it here! Cindy
My sister, a 45 yrs old, was just diagnosed with Bulbar Palsay ALS two weeks ago after having symptoms of slurred speech, difficulty swallowing, and weakness in her thumb and arm. In less than two weeks she can barely swallow and is eating only liquids - Boost - and mushy baby food type foods...
I found this site that is very informative, Especially for newly diagnosed patients. I hope people will read it and benefit from it.
It all shows diagrams of the different names/parts of the body that is affected:
http://www.llu.edu/llumc/neurosciences/als/#when
Lorie-Still Going:-D
Hi, my name is Sammantha and i am 28 years old and newly diagnosed. I have some muscle atrophy but i can still use my muscles. I get tired quick and strenuous activity causes my muscles to shake/stiffen/cramp and i get an all over feeling of heaviness. Like i have weights attached to my body...
My mother has recently been diagnosed with ALS. She is still in the process of getting the final confirmation and has yet to get a second opinion, but she has many of the symptoms of ALS. It has been a rather emotional rollercoaster and not knowing has been hard. I am currently in the Air Force...
Hi everyone!
I was hopefull when I found this site; dedicated to this very subject.
I am a 37 year old mother of 2 young girls (6 & 5) who was just diagnosed with ALS Bulbar. I am so very scared and depressed. Today I have been more proactive than I've been in the 2 weeks since I saw the...
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Hello everyone, I am newly diagnosed with ALS (2/15/07 - what a valintine gift). I am 34 years old and was wondering about all the orginizations that I need to join for loan closets and money for modifying your home or car and any other benifits to having this awful disease.
I am still going...
I have found an article that appeared in Applied Neurology that gives a run down on ALS, the symptoms, diagnosis, research, etc... it is quite comprehensive and will help those newly diagnosed. The website is as follows:
http://appneurology.com/showArticle.jhtml?articleId=165701902
This is...
Hi
I just wanted to thank those who have this terrible disease for their kindness and concern to those who worry about having ALS and to those who do have ALS. Also, I would like to thank those who did respond to my previous posts. For me, it hurts to read of those who are newly diagnosed...
Hello all my name is Jim I was just diagnosed with als and it's just sinking in.So as some may know it's a little scary and worriesome i'm looking for as much info as possible because i've ignored the symptoms for quite some time, My prayers are with you all. Thank you