newly diagnosed

  1. Tomswife

    CCALS TRAUMA Monthly Meetings

    2nd Wednesday of every month, 7:00 - 8:00 pm ET October 11, 2023 | November 8, 2023 | December 13, 2023 Our own Trauma & Spiritual Care Liaison, Julie Yau, Ph.D., SEP, will be hosting a monthly gathering for our community focused on trauma awareness and healing. CCALS has long recognized how...
  2. G

    Newly diagnosed

    Any suggestions on how many calories a day a person with ALS should be taken in daily. My brother had his peg tube placed recently and has started on Jevity. He was is still eating but appetite has decreased and chewing is more difficult. I am worried that he is not getting enough calories to...
  3. KimT


    Today I had my remaining crown replaced with a temporary. In two weeks I'll go back for the permanent. The last thing I wanted to happen was for a cracked crown to break off when I'm not as mobile as now so I had it done. They had all the info in my chart and there was a new dentist only 28...
  4. G

    Help - newly diagnosed

    I'm a bit lost - finally third neurologist confirmed I have ALS. I am using walker now - wondering if I should go ahead and purchase a used wheel chair on Craig's List. Also - in a great deal of pain at night - horrible cramps - given muscle relaxers - still little help. They tell me ALS is...
  5. K

    Optimal living situation- financially, emotionally, spiritually etc

    My pALS is my mom. She is newly diagnosed with bulbar onset ALS. As of now her mobility is not impacted too much, just her speech, swallowing and breathing. We have been discussing living arrangements as her mobility and breathing decline. Other pALS out there, what did you decide? Did you...
  6. R

    Newly diagnosed with MND/probably ALS but have questions

    Hi there – I am a 53 year old female and was recently diagnosed with MND, probably ALS, after two abnormal EMG’s in December. I have had blood work for the usual things (all negative) and MRI’s for the spine and brain (also negative). My only presenting functional issue is weakness in my...
  7. K

    PVA/newly diagnosed

    My husband is newly diagnosed and a veteran. We contacted PVA in Houston and PVA filed a claim for benefits. Does anyone know how long this should be taking? Once the claim was filed, the PVA person will not reply to our emails or phone messages. We are new to this and thought PVA would be...
  8. G

    Please Review and Comment: ALSinfo

    Essential information for the newly diagnosed! This is my magnum opus. This, along with my other documents and efforts to support the ALS community, is how I justify my continued existence and attempt to make amends for a lifetime of hubris. I have just begun my 7th year post diagnosis and I...
  9. S

    Opinions on Symptoms

    Hello everyone. First off, I would like to say thank you so much for the continued support you provide to people who are scared about symptoms or newly diagnosed with ALS. A bit of background information about myself: 27 y/o caucasian female who is in the midst of evaluation by a...
  10. D

    Medication - Newly Diagnosed In September

    One option given at my first ALS Clinic visit yesterday was Radicava infusion treatments. Comment and/or experience with the process please. If I do these treatments I will not be eligible for a couple of trials they are doing at the ALS Clinic.