- Aug 11, 2007
Hi, my name is Sammantha and i am 28 years old and newly diagnosed. I have some muscle atrophy but i can still use my muscles. I get tired quick and strenuous activity causes my muscles to shake/stiffen/cramp and i get an all over feeling of heaviness. Like i have weights attached to my body. If i do strenuous activity like yardwork i pay for it the next two days by having to lay low.... But, i can go on normally if i take time to rest and do activities like light swimming, this loosens my joints and causes less stiffness. I am so scared when i go back to work because i know i will not be able to keep up with the children i take care of. Their are 18 of them 3,4, and 5 year olds.... There is no way i can say okay kids don't do anything for the next hour because i need to rest...... Any suggestions out there on how to deal with this? Are you like me, i look normal, i just don't have the strength and endurance of people my age.