money

  1. N

    Insurance for Spouse

    Good Morning, Giving this a try. A little background for my dad: He was diagnosed early months of 2017, receives Social Security Disability. Medicare A and B, recently enrolled into Supplemental Insurance as well. My mother depended completely on his income when he did work. My dad can no...
  2. P

    Portable O2

    Hi, I am looking for a portable O2 machine, sick of changing the portable bottles, and packing 10 of them in the car if we go away anywhere, and lugging the oxygenator around is hard when it's just me and my PALS. Got quoted $2500 for new and around $900 for used. Just wondered if anyone had one...
  3. P

    Coping, Just about.

    Hi, I am new to this forum. My Husband Steve has ALS, diagnosed 1/02/2015. Steve had a trach and feeding tube fitted in May. Just about feeling like I am getting my head around it over the last few months. The care involved is incredibly time-consuming and tiring. I feel trapped at times, feel...
  4. C

    Need help finding the right sling!

    We bought a used overhead lift system and I'm searching for the right sling. From what I've found online I have a 2 point lift? Everything I'm finding is for a 4 or 6 point lift. The lift is a Liko 200 and was told it was bought last year and only used for 3 weeks before her husband passed...
  5. C

    assistive technology

    My father was recently diagnosed with bulbar onset ALS. He is progressing extremely fast. He can no long talk, eat, or swallow. His right hand is very weak. My questions is are there any assistive devices for communication that are free or at least financially feasible?? He is retired with...
  6. S

    Overwhelmed

    Tillie thinks I should start my own struggling thread so here I go... Maybe this should be named exhausted? Idk?! Some of this will be a repeat from the CALS thread. I have had grandkids pretty much 24/7 this entire week. I adore all of them... but they also wear me out. My daughter and her...
  7. B

    Independance Conspiracy

    I am really pissed off, but will try to go easy on your ears.:-( Last week my son went on vacation and took his wife and 3 daughters with him. The oldest daughter stayed with us because she had some dance class rehearsals and didn't want to miss out, she is 14 and absolutely beautiful. My...
  8. S

    A few concerning symptoms. Just anxiety?

    I have been reluctant to post anything here (have been reading for a while) because i felt that it would just fuel my anxiety, but now I feel like it may be beneficial. I realize that I may just be suffering from medical anxiety, however, i do have a few symptoms that i know are not just in my...
  9. L

    ALS TDI and new AT-1501

    ALS TDI. AT-1501 is a new cure for MND/ALS but research is progressing slowly because there is no money. How is it possible? Can anyone explain to me what it is about? Regards, Lolita
  10. C

    2016 Permobil M300 Corpus 3G Power Wheelchair for sale - Fully loaded

    2016 Permobil M300 Corpus 3G - Fully loaded Near mint condition - Accessories included Power tilt, recline, and leg-rests - 8" power seat lift $4500 obo Link to craigslist ad (more images here) Free local pickup (I'm in Redmond, OR) ... $500 for freight shipment to anyone else in the U.S...
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