free

  1. Nuts

    Life

    Matt has been gone four months, and it feels like a lifetime. On the other hand, I think I'm just now mourning what we went through. All the losses that I was unable to mourn because we were too busy trying to live--I think they are battling their way out of the box I locked them in at the time...
    • Nuts
    • Thread
    • als crying dad dementia family father fear free hospice pain
    • Replies: 69
    • Forum: Past caregivers
  2. Lkaibel

    Brian Flies Free

    I woke at 3:00 AM to give Brian his meds to find that he had passed on. I am happy for him that he is free of the body that had become his prison. It was a relief to be able to call hospice and not even have to have them come out. The University of Minnesota Bequest Program was here by 4:30 AM...
  3. B

    Worried About Symptoms

    Hello! Thank you for allowing me to post this on this forum. I really appreciate any insight! About a year ago, I was diagnosed with a gluten sensitivity, hiatal hernia, and too much stomach acid. I was placed on a medication and a gluten-free diet. After a few weeks, I noticed some twitching...
    • bp1234
    • Thread
    • abdomen ability als arm balance bed children diagnosed diet free friend go away meds mistake muscle muscles neurologist sensitivity shoulder symptom symptoms twitches twitching weakness worried
    • Replies: 8
    • Forum: Could this be ALS?
  4. B

    Bed Railings

    My sister just purchased a Right Flexabed but misses the handles (railings) she was able to use with her regular bed. Has anyone heard of a free-standing, over-the-bed device or any other option for use when attached side rails are not? Thank you
  5. T

    tricks against fears and anxiety

    Dear all. I've been caught into a depression spiral lately. I'm quite stable symptomwise as for now but I'm taking a heavy beating mentally. The most challenging moments are dusk and mornings just after waking up. There creep the worst thoughts of any day: anger, 'why me', mediations about my...
  6. KarenNWendyn

    The newlywed couple

    A newlywed couple moves into their new house. One day the husband comes home from work and his wife says, "Honey, you know, in the upstairs bathroom one of the pipes is leaking, could you fix it?" The husband says, "What do I look like, Mr. Plumber?" A few days go by, and he comes home from...
  7. A

    Need Advice

    Thank you the helpful saints of here who tried to help people from all over the world. I have read not only stickies but may be all the threads of this section. Yes I have full of anxiety and try to struggle against it but I am not able not manage it yet. September of last year I had headache...
  8. KimT

    NEW APP for PALS

    There is a new free APP for iPhones and iPads called "I have voice." The developer lost someone with ALS and decided he wanted to do this. He asked for feedback on the features. It uses eye gaze technology so you need a newer iPhone or iPad. I've not yet downloaded it but will do tonight...
  9. lgelb

    Medicare "What's Covered" app

    Free, now available for iOS and Android.
  10. J

    Brainstorm Nurown 'Right to Try' participant shares progress

    As some of you may know, Brainstorm granted one PALS free access to NurOwn as a 'thank you' for the work he did on Right to Try. He is not in a trial but is being given the course separately. His update is on Facebook -- matt.bellinski.7 Mod note -- not linking directly due to fundraising...
    • jaclyn
    • Thread
    • clinical family free fvc hope improvement lung capacity medical night nurown speech swallowing therapy treatment trial update work
    • Replies: 90
    • Forum: Research and trials
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