free

  1. wishmobbing

    International Division of Grief

    The good memories of my boyfriend are something I cherish, his weaknesses and quirks are something to chuckle about with friends. I'm a happy and pretty much trigger-free widow. Except when one of our PALS here takes leave. That always pulls the rug from under me and I howl like a hound. I...
  2. Nuts

    Matt is gone

    We set my darling husband, Matt, free today. He made me promise to do it, but he clung to life even when life offered him nothing but pain. He was a fighter to the end. He was comfortable, and he did not appear distressed--but he was stronger than anyone imagined. He was surrounded by his...
  3. opusensemble

    I guess this is for real

    Dear friends, My story so far was an impressive story of fight for survival. 5 years ago I had a severe adverse reaction to an antidepressant and became bedridden and in extreme suicidal agony for 4 long years. My research was too incredible and extense to condense in a thick collection of...
  4. J

    Struggling but trying to be realistic

    I have talked myself out of posting here 100 times. I have read all the stickies and am well aware of what they are saying and am trying to wrap my head around believing them. With that being said here is what is going on with me 33 yr old female with a precious 1 year old girl. 6 mos ago I...
  5. lgelb

    Medicare Advantage changes

    Since Medicare open enrollment is happening through December 7, just a quick note on some 2019 changes that could affect your decisions. It is always worth looking at what you have vs. the competition every year. Not all counties have MA plans available if you are <65 or at all, but many do...
  6. D

    Access to Published Papers

    Looks like we are denied access to most published papers. Since it seems that a number of these papers are the result of grants from the ALS Association/Foundation I think those of us with ALS should have free access and not be required to pay the exorbitant prices to get a research paper.
  7. lgelb

    Tablet rolling floor stand

    Older version (uses four little bungie cords instead of clamps) of the non-powered LEVO G2 Deluxe Tablet Stand free to a good home. Works well for tablet use (with a mouthstick, fingers, voice control, etc.) in a bed, wheelchair, lift chair, sofa, or in class. Very stable, weighted base. Pick up...
  8. Nikki J

    WendyWooG

    Our dear friend Wendy passed away last month. She was a lovely, brave and generous woman. It was my honor and pleasure to meet her in person this spring. Wendy is much missed by all of us here and of course by her family and friends. Deepest condolences to Chris and the rest of her...
  9. KimT

    Jason's FUZE protocol

    If any of you are interested, Jason posts on ALSTDI forum and has been working on a a lifestyle protocol for years. He published it in July and I just saw it today. Jason helped me get my free copper levels down and he has been living with ALS for over 10 years. <mod: link removed as per TOS>...
  10. J

    Voice Access App for Android

    I came across an blog post about the Voice Access app for Android. I downloaded it and tried it out on my Samsung tablet. It's very easy to use and would really help PALS who cannot use their hands, but still can use their voice (like my DH). I'd add the link, but I know that can sometimes...
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