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I have talked myself out of posting here 100 times. I have read all the stickies and am well aware of what they are saying and am trying to wrap my head around believing them. With that being said here is what is going on with me 33 yr old female with a precious 1 year old girl. 6 mos ago I...

Since Medicare open enrollment is happening through December 7, just a quick note on some 2019 changes that could affect your decisions. It is always worth looking at what you have vs. the competition every year. Not all counties have MA plans available if you are <65 or at all, but many do...

Looks like we are denied access to most published papers. Since it seems that a number of these papers are the result of grants from the ALS Association/Foundation I think those of us with ALS should have free access and not be required to pay the exorbitant prices to get a research paper.

Older version (uses four little bungie cords instead of clamps) of the non-powered LEVO G2 Deluxe Tablet Stand free to a good home. Works well for tablet use (with a mouthstick, fingers, voice control, etc.) in a bed, wheelchair, lift chair, sofa, or in class. Very stable, weighted base. Pick up...

Our dear friend Wendy passed away last month. She was a lovely, brave and generous woman. It was my honor and pleasure to meet her in person this spring. Wendy is much missed by all of us here and of course by her family and friends. Deepest condolences to Chris and the rest of her...

If any of you are interested, Jason posts on ALSTDI forum and has been working on a a lifestyle protocol for years. He published it in July and I just saw it today. Jason helped me get my free copper levels down and he has been living with ALS for over 10 years. <mod: link removed as per TOS>...

I came across an blog post about the Voice Access app for Android. I downloaded it and tried it out on my Samsung tablet. It's very easy to use and would really help PALS who cannot use their hands, but still can use their voice (like my DH). I'd add the link, but I know that can sometimes...

Hi guys, its me again. Im sorry for writing here and I know I should not be lurking here since Im most likely not belong on this site. But I do have some answers I would like to ask you about my current status, and I really hope that Im not disturbing or offend anyone by doing this but my body...

I posted recently with questions regarding the Permobil F3 (I’m currently borrowing one from my loaner closet and like it so far). That previous thread is here: https://www.alsforums.com/forum/general-discussion-about-als-mnd/42619-question-you-wheelchair-geeks.html I did receive a gift of a...

I have shared so much here over the years that I feel that this part of journey should be shared here before anyone or anywhere else. I hope that this helps a CAL somewhere. Steve was very anxious last night and today about the mask coming off and his breathing. He was fighting the meds meant...