free

  1. S

    A year has past...

    This morning at 4:11 was one year since the love of my life became free of his hell. Or should I say our hell... I don't even know what to think about that. The hell we went through, is more than I can believe actually. Honestly, how do any of us make it through that? At 4:11, another kind of...
  2. D

    Could Familial ALS be eliminated?

    One of my daughter’s first child had Cystic Fibrosis, which is a genetically passed condition. So they could have additional children with NO risk of CF they elected to have In vitro fertilization for the next children. Embryos were created and tested and only CF free embryos were frozen. IT...
  3. T

    Slipping Away

    Hi all. I feel it wont be long until my husband is set free from the horrid disease. He's been in hospital now for 4 weeks with pneumonia and sepsis and is getting worse. I've no-one to talk to about it, I don't want to be so upset to my kids as they aren't coping at all with their dad's...
  4. I

    Waldo is in Heaven

    Bob Stansbury, also known as WheresWaldo, passed on July 22, 2018. He and his wife, Therese, were members of the ALS Support Group in Chico. I met Bob through this forum and we realized the connection during a Support Group meeting. He was diagnosed years ago but remained upbeat and very...
  5. KimT

    Multiple Medical Issues

    I wasn't sure if I would post this at all. After deciding I had no idea where to post it but, for me, it feels like a rant/complaint so here it is. Since my diagnosis I've always believed that I should take good care of my general health, get some good sun each day possible, get some light...
  6. L

    Flying free soon

    My husband who has ALS/FTD will be flying free soon and going home to be with his Lord and Savior, Jesus Christ. He was diagnosed in May of last year. He has pneumonia and his lungs are completely full. It happened in a matter of hours. He’s resting comfortably now but had a rough day...
  7. wishmobbing

    International Division of Grief

    The good memories of my boyfriend are something I cherish, his weaknesses and quirks are something to chuckle about with friends. I'm a happy and pretty much trigger-free widow. Except when one of our PALS here takes leave. That always pulls the rug from under me and I howl like a hound. I...
  8. Nuts

    Matt is gone

    We set my darling husband, Matt, free today. He made me promise to do it, but he clung to life even when life offered him nothing but pain. He was a fighter to the end. He was comfortable, and he did not appear distressed--but he was stronger than anyone imagined. He was surrounded by his...
  9. opusensemble

    I guess this is for real

    Dear friends, My story so far was an impressive story of fight for survival. 5 years ago I had a severe adverse reaction to an antidepressant and became bedridden and in extreme suicidal agony for 4 long years. My research was too incredible and extense to condense in a thick collection of...
  10. J

    Struggling but trying to be realistic

    I have talked myself out of posting here 100 times. I have read all the stickies and am well aware of what they are saying and am trying to wrap my head around believing them. With that being said here is what is going on with me 33 yr old female with a precious 1 year old girl. 6 mos ago I...
Top