Hello everyone. I'm new on here have alot of fears and anxiety about ALS.
I have not been diagnosed. I've had four opinions from 4 different doctors that say I do not have that. I do have an EMG schedule in 3 weeks.
I've been having a lot of pain in my legs feet arms. I would say minimal...
shortness of breath
worried about als
Hi everyone; let me introduce myself. My name is Yasmin and I am a 25 year old female. I hate that I’ve come here and I wish I didn’t get to this point because I feel absolutely awful for doing so but the anxiety ended me up in the hospital and I am at my lowest point with this fear or...
Hello everyone. First of all, I would like to sat that I’m really sorry you have to go through this awful disease and that I’m keeping in you in my prayers. And thank you so much for all the reassurance you provide people who are struggling with getting diagnosed or are just simoly worried about...
Hello everyone, I am sorry to bother you. I am from China and my English is not good. I am 15 years old and no one in my family has a nervous system disease. I learned about amyotrophic lateral sclerosis a month ago. Soon I felt that my right arm was weak and my left arm was weak.
I went to...
Hi everyone. Thank you for welcoming me onto this site.
I read the sticky, so I'll try my best to adhere to the statements there.
I'm 27, female, and have been having concerning symptoms since mid-September 2018.
Symptoms first started in my left hand and forearm. Started with twitching and...
Hello, first of all thank you for letting me join this forum.
I’ve been dealing with some symptoms in the last month and I wanted to ask your opinnion about it. I’m 40.
For some time I had some numbness in my hands, legs and upper lip so I had an appointment with neuro to see if something...
Can any PALS explain to me what the sensory overload feels like? My sister only blink yes, no and maybe now. She cannot use her computer any longer as her one hand she had use of is no longer working. The senses she has, she had previously explained are hyper sensitive. So in a room full of...
So sad. Husband diagnosed end of December. He's very used to being in charge and making all the decisions. I am a RN/NP. So I know a bit about caregiving. He fights me on all the ways to do things. Slowly he is beginning to listen to me but it's frustrating. I only seem to cry when...
I know this isn't an anxiety or fear forum. But I have some concerns that I am really worried about and confused about due to Google. First off, I'm so sorry for anyone going through this disease- I don't want anyone to be wasting their time reading this because I'm not worth it...
How I hate that question now.
It's become almost a default greeting. I know most people are trying to be kind by asking, but I honestly don't know how to answer anymore. I usually just say "We're OK" or "We're hanging in there". But honestly, we're not OK. And I'm sometimes just hanging...