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JuggerChan

New member
Joined
Jan 20, 2019
Messages
1
Reason
Learn about ALS
Country
US
State
MA
Hi All,

I first want to thank you for the opportunity to voice my concerns as well as my apologies for any inconveniences.

To start, my symptoms began a year a ago with some twitching on my stomach. I did a quick google search and Lou Gehrig's Disease came up. At first, I quickly brushed it off and told myself I didn't have it. However, within the next week, I read more and more about ALS and was convinced that I had ALS. The twitching then spread all over my body to my arms, legs, neck, tongue, etc. I also started getting perceived weakness. I was able to manage these symptoms but as a result I grew very depressed.

However, recently, I have begun getting more scary symptoms that are driving me crazy. Now, I know many of you will say that this is anxiety and that I should see a doctor and a therapist. I have already seen my doctor many times who believes my twitching, fatigue, and weakness are attributed to anxiety and stress. But the recent symptoms have me thinking otherwise.

My newer symptoms include twitching/tremor of the fingers and hand, cheek and nose tremor when I scruch my nose or smile, tremor throughout my entire body, feeling that my walking is abnormal, hand shaking when I hold chopsticks, hand pain when I hold a pen or fork, and my most concerning one is a tremor or twitching in my left pinky toe when I move independently.

Here is a quick video of my toe quivering when I move it: https://www.youtube.com/watch?v=GpLG9nDI2QA

I know you guys are not doctors, but I would love and appreciate your advice and thoughts about my condition. Thank you and again, sorry for my inconveniences.
 

KarenNWendyn

Forum Supporter
Moderator
Joined
Jul 29, 2017
Messages
1,771
Reason
PALS
Diagnosis
07/2017
Country
US
State
Oregon
Step one is to read this: https://www.alsforums.com/forum/do-i-have-als-als/26591-read-before-posting-answers-common-concerns-about-possible-symptoms.html

Step 2 is to work with your doctor. If your doctor didn’t find actual weakness on your exam, then you don’t have ALS. If your main symptoms are twitching and perceived weakness but no actual muscle function failure, then you don’t have ALS.

Believe your doctor. If you don’t believe your doctor, then see a neurologist. Otherwise we can’t really do much more for you here.
 
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