advice

  1. D

    My symptoms

    Hello I am a 19 year old male and have had multiple symptoms and have some questions. Before I start I know twitching isn’t a “sign” of als but can go along with it. Started off about 3 weeks ago I just started to feel off as I am pretty well tuned with my body. I’ve had random twitching for...
    • Damion99
    • Thread
    • advice als arm back fingers lift neck pain pain questions symptom symptoms twitching weakness worried
    • Replies: 3
    • Forum: Could this be ALS?
  2. K

    Thoughts on When to Get Hospice

    My PALS and I have decided to use hospice when the time is right. He uses a Trilogy about 17 hours a day, does not want to be trached or have a PEG. He is able to eat whatever he wants (with the help of water to wash it down), he transfers from scooter to chair/commode but anything he does is...
    • katygal
    • Thread
    • adjustable advice age bed breathing breathing issues chair clinic cough assist decline eating fvc helpful hospice hours love mip peg pwc scooter support transfers trilogy
    • Replies: 6
    • Forum: Current caregivers
  3. M

    Parent with C9 ALS

    Hi, My mom recently got diagnosed with ALS and tested positive for the C9 gene. I am going to get tested soon- I am pregnant and due in a couple of months now. But I just need to know either way. I am driving myself crazy thinking that everything is the start of ALS, but I know I am stressed...
    • Motherofthree
    • Thread
    • advice als diagnosed driving ftd muscle muscle twitching muscles scared twitching weakness
    • Replies: 12
    • Forum: Familial ALS (FALS)
  4. S

    Advice appreciated

    Good morning and thank you for accepting me to post on this board. I did not ever think I would be making a post like this. I have read through the stickies and the previous posts regarding twitching and symptoms. I still had a few questions, if you don't mind. I have been to my PCP and...
    • sunshineandroses179
    • Thread
    • abdomen advice ankle autoimmune back balance diagnosed dying foot ice iron muscle pressure questions reading symptoms tests twitching work worries
    • Replies: 9
    • Forum: Could this be ALS?
  5. G

    Help - newly diagnosed

    I'm a bit lost - finally third neurologist confirmed I have ALS. I am using walker now - wondering if I should go ahead and purchase a used wheel chair on Craig's List. Also - in a great deal of pain at night - horrible cramps - given muscle relaxers - still little help. They tell me ALS is...
  6. D

    Concerned about continuing symptoms

    Hello to all, I am concerned about a couple things going on, and hoping you guys would be able to help me, or give me some ideas on my next step. Everything started about a 1.5-2 years ago. I flew up to Montana for the week to spend time with family. Had a good trip until the end when I got...
    • Deer1
    • Thread
    • advice als als? anxiety back concerned family heart heaviness mistake muscle muscle twitching onset pain pressure questions stress symptom symptoms test tongue twitching vision weakness work worried
    • Replies: 1
    • Forum: Could this be ALS?
  7. M

    25 year old. Possible ALS?

    Hi everyone; let me introduce myself. My name is Yasmin and I am a 25 year old female. I hate that I’ve come here and I wish I didn’t get to this point because I feel absolutely awful for doing so but the anxiety ended me up in the hospital and I am at my lowest point with this fear or...
    • MinFoy
    • Thread
    • abdominal advice als als? anxiety atrophy back balance bfs diagnosed diagnosis emg fear female mri muscle neurologist possible als sensitivity stroke tests tremor twitches weakness worried young
    • Replies: 6
    • Forum: Could this be ALS?
  8. W

    Questions on testing

    Thank you for taking the time to read what I have going on. I am a 44 years old mom of two adult children and a 10 year old. Last month, my boss called an ambulance and had me taken to the hospital because I was having problems talking, couldn’t swallow and couldn’t lift my leg and I panicked...
    • Walstorj
    • Thread
    • advice arm back children diagnosed diagnosis emg food heart lift mri myasthenia gravis neurologist questions stroke swallow symptoms test testing tests tongue twitching ultrasound wanted weakness
    • Replies: 2
    • Forum: Could this be ALS?
  9. J

    My symptoms, my fears

    Hello, first of all thank you for letting me join this forum. I’ve been dealing with some symptoms in the last month and I wanted to ask your opinnion about it. I’m 40. For some time I had some numbness in my hands, legs and upper lip so I had an appointment with neuro to see if something...
    • JTTP
    • Thread
    • advice anxiety cramps emg fear finger fingers hours ice mri night pain stiffness symptoms test tests twitching wanted worried worried about als worry
    • Replies: 10
    • Forum: Could this be ALS?
  10. T

    Familial ALS continued

    Hello- For the backstory on this thread, please see the original Familial ALS posting. Perhaps a moderator can combine these two? We have received the gentetic testing results from my husbands brother, who had ALS-like neuromuscular degeneration combined with a family tree with many ALS and...
    • Tkhalaska
    • Thread
    • advice als als and ftd brother familial familial als family family history ftd genetic genetic testing health military questions research symptoms testing
    • Replies: 4
    • Forum: Familial ALS (FALS)
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