advice

  1. D

    Tobii user needs glasses

    Tobii rep said bifocals with line don't work well with their eyegaze technology. My 50 year old eyes need help. Have any of you used progressive lens glasses with a Tobii? How was your experience? Do any of you have advice?
  2. F

    Would really appreciate some advice

    Firstly, I'm keenly aware what some of you are going thorough, and I'm in awe that you all still give advice and aid to others. A truly good sign of humans overall. Thank you. And I wish nothing but goodness to you all. I'm terrified I have ALS. My main symptoms are arm/leg weakness, some...
  3. kitkat

    Choices

    My PALS finally received his PWC a couple weeks ago. He should have received it almost a year ago, but miscommunications & ball dropping happened. It is set up with a head array so he can drive it, and a joystick in the back so I can drive it. Unfortunately, his neck has gotten so weak, he is...
  4. Jamesgol

    Wheelchair & van advice?

    I have now reached the stage where a wheel chair and van combination are needed. My neurologist just wrote the prescription for a wheel chair yesterday. The ALS Society is going to loan me a Permobil F3 until I can get one of my own. Which type of wheel chair (and options) do you prefer? What...
  5. R

    Advice about EMG result

    Hi everyone. First time poster, I first want to thank all of you for what you do on this site. Truly inspirational. I will be brief. My symptoms are twitches mostly in left calf ( about a month now) but sporadically other places ( all over). I have no clinical weakness that I can discern...
  6. S

    We are stuck and need advice

    I have had 2 accidents now and I just dont understand how it's not ALS related. Both now I have been in the bathroom on time but as soon as I see the toilet I cant hold it anymore and it all comes out. Is this normal? Plus my hair is so greasy and my hair on my head and eyelashes are getting...
  7. A

    Worried about these symptoms

    Hi! Male 44 years old here. ’m sorry to be posting but I finally decided to seek your advice. My wife and I are nervous and some of your thoughts might really help us. I’m having some symptoms that are worrying me. Here they are in brief: Dec 22: Odd headache in left temple— three pulses, long...
  8. A

    Need Advice

    Thank you the helpful saints of here who tried to help people from all over the world. I have read not only stickies but may be all the threads of this section. Yes I have full of anxiety and try to struggle against it but I am not able not manage it yet. September of last year I had headache...
  9. T

    Where to Go From Here

    Hello. My husband was diagnosed ALS May 24, 2018 at age 43. It all began in April 2017 when he began having difficulty clipping his nails, left hand onset first. From there it was over a year of testing, specialist, etc, which is the only normal thing I guess about this disease; difficult to...
  10. C

    MRI and now call with doctor

    So my Dad was called for another MRI of his brain 7 months after ALS diagnosis. That was 2 weeks ago. The neurologist said she wouldn’t call if nothing shows up. Today her office called and asked if my Dad was available for a phone call from the neurologist tomorrow at noon. Does anyone have...
Back
Top