My Dad slipped away peacefully on Wednesday, Jan. 30. ALS took his ability to move, to swallow, to speak, and finally to breathe, but it didn't take his joy or his strong faith.
Diagnosis was the end of December 2017, though he'd had symptoms for at least two years prior. Possibly...
Hi guys,
I hope everyone is doing okay today.
Since last September I have had extremely strange symptoms which have progressed. At the end of September 2018 I had a sudden onset of left muscle weakness and left arm muscle weakness. It wasn't gradual just happened one day. There was no less of...
Our journey began at a Joe Bonamassa concert in November of 2012. With no advance warning, Darcey was suddenly having difficulty walking. Later that same night, she'd be unable to rise from a seated position. It was the beginning of a life phase that neither of us anticipated.
For all of...
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I find myself at almost every meal hungry but unable to finish what I am eating. There aren't any swallowing issues, just an inability to keep eating, feeling tired, fullness, bloating, difficulty breating, and a general lack of excitement for the meal. My hands make it difficult to cut food or...
Earlier this week whilst driving my car I started whistling along to a song and not much sound was coming out, this is strange because i normally have a very strong whistle. I got worried and panicked a bit. Fast forward to this morning, I tried to get my dogs attention and went to make that...
I haven't posted in a while so I wanted to update.
One of the main reasons I haven't been on here is... I'm writing a book!
Or trying to. It has nothing to do with ALS or anything autobiographical. It's a scifi/fantasy romance. I've long been an avid fantasy reader, and always had stories of...
First, I want to say that I have been to this community off and on for the past week or so and have seen how incredibe you PALS and CALS really are. Thank you for doing something you certainly don’t have to do. This greatly helps people like me looking for some possible insight into their...
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Hi all,
My partner was diagnosed w. ALS in February (2018). He might have noticed the first signs in Oct. 2017 in his right foot.
He got a leg brace for drop foot. His right arm/had and foot/leg are very weak. Now he has significant pain in his right wrist. I got him a brace and it's best if...
My pals began a new behavior last week. She has been dealing with a lot of losses - speech, ability to swallow food, choking on pheglm etc. and started sleeping more and more. Sleeps 11 hours at night. Gets up and tries to drink a little coffee, goes to bathroom then gets back in bed. Family...
my ALS started with poore balance. i tripped, fell etc. no power loss at all. emng was ok, mri ok, nobody knew.
to be honest after few years, they looked at few main muscles in 2016 which were ok.
but i fell all the time.
can it be:
1. certain group of muscles are affected, so balance is...