Blog

Hi, I am Zülal from Turkey. I'm studying product design. My final project is about well being of patients with ALS and caregivers. I want to design product whould make easy life of patient with ALS and caregivers or I want to improve exist product. I am in research part. Could you help me in the project ? Any information is so important for me. Which kind products could help you in yours daily life ? Do you imagine a product not exist would help you in your daily life? Do you have some problems with products you use? 

I've suffered from ALS anxiety for about 4 months off and on, and now I noticed a little indent on my left arm. I'm dominant on my right arm but these little issue is cause so much anxiety. I've been lifting more with my left arm lately. There is no noticeable weakness. But it's just bothering me! Please help

Hello everyone,

I have been reading posts on this forum for the past 6 months or so and I would firstly like to say how incredibly sorry I am for all of you who are fighting this terrible disease.

I feel terrible for posting which is the main reason I haven’t posted since numerous symptoms have presented. I am in grad school and my symptoms and the anxiety they are causing is making it extremely difficult to focus on anything school related so I figured it was time to ask for some opinions. Firstly, I am a 23-year-old female. I have always been and am still very active. 

Hi my name is Brad I haven't been diagnosed with ALS I've been having weird symptoms like numbness, burning sensations or a prickly feeling It gave me crazy anxiety and I ended up going to the ER and they gave me many tests and said I'm fine. Two weeks after the first symptoms I started getting those muscle twitches which gave me more anxiety ... I also have this continuous pain in my legs mostly my knees and my joints crack every time I move.

I started complaining about leg fatigue in August 2015. After being referred to a vein doctor, who cauterized several veins, the fatigue, or weakness as I call it today, returned within a few short weeks. By February, 2016, I went back to my primary care doctor who said that we might be looking at ALS, which of course freaked me out. As such, I started researching different websites, including the ALS Foundation, which led me to the Mayo Clinic in Scottsdale, AZ. In April, 2016, the doctors performed a series of tests, which included an EMG.

Happy new year

To all!

I am a new member,a 50 year old Greek lawyer, married mother of two boys 16 and 19 years old.

Father is having hot flashes. The hot flashes have increased in length recently which has effected his ability to sleep- (only sleeping 2 hours a night)

He is taking Baclofin 20 mg every 8 hours and Tizanadine 2 mg 3 times a day. The doctors said his hot flashes are due to the muscle spasms and did not give any advice besides putting him on hospice/pain medication. :\

Hello, hope everyone had a nice Christmas! I'm concerned that I may be developing some ALS symptoms and would like to seek advice. I'm a female, 22 years, active, and haven't had any previous serious medicinal issues. About two months ago I developed an indentation in my left arm right between my deltoid and bicep. I did not hurt or injure it from what I can remember. The indentation is about an inch long and 1/4 inch deep. It's visible and my family has commented on it. The indentation has not got any bigger from when it first appeared.

Hello, folks. I just wanted to ask some questions about symptoms that I've been having. By the way my father does have a cousin who passed away due to ALS. Last Sunday I was walking and looking at Christmas lights and all of the sudden my right leg felt like it lost power and felt weak. I was still walking on it though. It just felt funny. I also started to get a little bit of twitching on my legs as well. Now yesterday my shoulders, arms, and hands started to feel weak and heavy as well. I can still pick objects up but it just feels funny and heavy. I am very anxious that it might be ALS.

My father was recently diagnosed with ALS, its onset is in the bulbar region, we are currently waiting for his first Doctor's appt, which seems to be taking forever. I am just looking to someone to give me advice about how quickly the disease will progress etc...really just need some information from someone has gone through...thank-you