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Receiving a diagnosis of ALS is challenging, frustrating and often times, overwhelming. There's a wealth of information to read, digest, and understand. In addition to a steep learning curve you have to deal with the fears, questions, and mystery of a life changing situation. 

We would like you to be a part of our community. We help each other along the ALS journey. If you are newly diagnosed we can answer questions and make your experience moving forward less lonely and less daunting. 

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― Helen Keller

The community at ALS Forums, past and present, has dealt with many of the same issues you've had, will have today, or will have tomorrow.

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mary's picture

My daughter is a 25 years old. At age 23 I started to notice her dragging her right leg. Then, came stumbling, then came problems with the left leg, and shaking in her right hand. For a while she could walk by herself. Then she had to use a walker because the falling started to happen more often. Now she doesn't use a walker anymore, I am her walker. When we go places she is usually in a wheel chair. Now her left arm is starting to shake. The shaking is a wide shake not a short shake. They have ran every blood test they can think of and they said it was depression. Now she has been fighting a headache for four days. I help in and out of bed. To the bathroom in the shower. The only thing I don't help her with is her feeding. She can still feed herself but it's not without difficulty. I am lost. I don't know what else to do. Help please!
Kris Carpenter's picture

it might be Lyme disease. see a LLMD