MMN or ALS and the waiting game

I am waiting to begin IVIG treatment for Multifocal Motor Neuropathy. I have major atrophy in my right hand, muscle weakness in right leg and left hand and arm. I have fasciculations pretty much everywhere and,they just started in my lip. I'm wondering if anyone else with MMN has fasciculations in their lips. I hate that their doesnt seem to be much information out there... Any input?


My father was recently diagnosed with bulbar onset ALS in April. He had been to many different doctors with misdiagnosis's along the way. At this point his swallowing is almost non-existent. He goes back and forth about a feeding tube but he is so far along that his lung functioning is at 48%. I am worried about him having trouble in the operating room. My questions are:
1. At what point is it considered unsafe to place the peg tube with comprimised lung functions?
2. Is it normal to go back and forth with the decision even tho he has lost well over 100 lbs.

Is it ALS,MS or Generalized Anxiety disorder?

Hello everyone, This is Ismail here. I am 28 year old musician. I started having weird symptoms around one year ago, like nystagmus(i did have minor strabismus before. Started having problems with my speech which would aggerivate when under influence of cannabis.Then about 5 months ago this fatigue started which still hasnt gone away(i was very hyper individual by the way) it was then accompanied by weakness in my right shoulder and arm. My right side of back had discomfrt and weakness aswell.

biting mouth and tongue ouch

I recently figured out what all these problems with dropping things, tripping, tight muscles that can't quite be described, exhausted muscles like I never felt so bad when I skied professionally or doing that equestrian thing.

Today, I thought, my tongue and mouth is not like hamburger it is now like shredded beef.

I am making an appointment with a specialist at U of Iowa Hospitals and Clinics. Any suggestions on the biting.

confused between hirayama and als

I am new to this forum, when I noticed weakness and muscle wasting I consulted a neurologist.

The neurologist had done nerve conduction study and EMG. NCV is normal, but I am not able to interpret EMG report.

Please go through the following image and let me know your views on it.


I entered a bloq a few days ago and have not heard anything bak. Nor, have I seen my blog posted. wondering if I'm doing it right?


I entered a bloq a few days ago and have not heard anything bak. Nor, have I seen my blog posted. wondering if I'm doing it right?

Hearing Impairment in Amyotrophic Lateral Sclerosis

Greetings world,

I would like to open the floor for discussion on Hearing Impairment in ALS. I am a fourth year medical student rotating on Neurology with the Consultant Neurologist, Dr. D. Gilbert. I am currently following a patient managed by the service diagnosed with ALS.

My patient has severe hearing impairment and has compensated by learning to read lips. Has anyone seen or experienced this symptom?

Please help worried I'm having als symptoms

It's been about two months so far
I've been having numbness and weakness in my arms hands legs and shoulders
It all started really suddenly just one night everything went numb and After that it's been different