Unusual symptoms

[Hollylyngroff]

Hi! I am 41 yr old female. This month I have had a normal Nero clinical exam and all normal blood tests. In March I had normal mri of head and spine. My symptoms have been going on everyday for the last 3 months. Some days sensations are worse than others. I have some foot, hand, calf cramps. Twitching everyday pretty much 24/7. A lot in my calves. Some of the twitches I can’t see only feel. I also get twitches all through my body, my arms, back, lip, chest, even in my butt, some of the time they are just like one twitch then move on, but my calves will last longer. Today I am experiencing one in my inner thigh/knee area that is really big and persistent. Like never bow free. There are areas that the twitches like to come back to. So yes it’s all over my body but in a lot of the same areas. Also I feel like exercise can make the worse. My calf’s can go crazy after. I feel twinges or tingles in fingers and feet sometimes.(pins and needles) I also feel like a buzzing, crawling, and almost like Electric feeling in my legs and sometimes other places. sometimes a water feeling in certain area of legs. I have been having extreme anxiety for the last 3 months with all these symptoms as well as night sweats. My hand go numb slot at night as well. I not sure if these are sign of early ALS on set?

 

[ShiftKicker]

Hello-

Please make sure to read here first: Read Before Posting, as it provides a fair amount of information about twitching and why sensory issues point away from ALS, and also provides some guidelines about posting.

What does your doctor say about your twitching? A clinical exam can provide information about what the issue might be. Have they observed clinical weakness?

 

[Hollylyngroff]

Thank you for your response. Thank you for sharing. The Dr. said no clinical weakness. A normal Nero exam. He just said as now all looks good. This does not put my mind at ease.

 

[Marieb425]

If they think you have ALS, you would likely hear “We can’t rule out ALS at this point.” This is what a doctor told my husband at his first EMG. A couple months later, at the second EMG, the neurologist told us that he suspected ALS and sent us to promptly be seen by an ALS specialist for an official diagnosis. If you’re not hearing that, then you’re probably okay.

 

[Hollylyngroff]

Update… Hi! I was recommended for emg. Performed on left leg, right arm, and back. All normal. I have been so overly concerned with all my sensory issues, I failed to talk to the DR. About my swallowing issues, pills getting stuck, food going down slower. I feel like am not talking the best all the time, but family says it fine. Would my emg have picked something up in the bublar region if I were experiencing symptoms all over. Thank you!

 

[Nikki J]

You had a normal exam Family thinks your speech is fine you had symptoms in your extremitoes and a normal emg in your extremities. You are good to go. Congratulations

 

[Hollylyngroff]

Thank you for your reply. I very much appreciate it!

 

[Hollylyngroff]

I have a question about my emg, I do still have body wide twitching as well as the other symptoms listed about. I have been having a lot of neck, jaw soreness, feels week, yawning a lot, along with some swallowing issues. Would you recommend an emg in bulbar area? Or since I have twitching in limbs and that is where the emg was done, should that be enough? All these weird symptoms have definitely increased my stress level. Thank you!

Should also mention I do have twitching in tongue and neck.

Tested areas

 

[lgelb]

Nikki already answered this question. A bilateral clean limb EMG in multiple regions should reassure you that ALS isn't on the table given the issues you have stated (and again, widespread twitching is another strong argument against).

Sleep can be a big part of this picture, and if yours hasn't been all that, I'd look seriously at ways to de-stress and get your rest.

 

[Hollylyngroff]

Ok, thank you! Just wanted to get some extra advice since I have been experiencing some more bublar type issues. I appreciate your time and response! Thank you!

So just to confirm with all my symptoms going there is no reason to believe I have either onset?
Thanks!