BuckInNyc
New member
- Joined
- Sep 12, 2018
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- NY
- City
- NYC
Hi,
I’m a 30yo male who has had twitching for 4+ years and progressive weakness in my right forearm and calf over the past 1.5 years. I’ve had clean EMGS (2016, 2018) from two separate neuros and have set another EMG for next week. I recently saw the neuro in November as a follow up from 2018 EMG. Although I told him about the progressing weakness, he told me another EMG was not necessary as the regular neuro test was normal and I wasn’t showing signs of clinical weakness. He measured my calf and forearm and mentioned the right forearm and calf were slightly larger than the left (which is very frustrating because I can see how my forearm muscle has atrophied slightly), another reason not to have another EMG, but said “if you want peace of mind, schedule another EMG” which I have scheduled for next week.
The twitching has been bilateral in places all over my body, but 90% of the times I twitch have been exactly where I see the atrophy in my right forearm and calf. Through my research I know that twitching usually comes after the deterioration of the motor neurons, so I’m perplexed as to why it seems to be flipped for me. I continuously test my right leg strength vs left leg strength, and although I’m able to flex (stand up on my toes like regular calf exercises), there just seems to be less of the muscle being used on the right side. I’m right sided dominant so it’s not making sense why the right side feels weaker.
Thinking about this has been so taxing on me over the past couple years and it hasn’t seemed to get any better.
I’ve seen all the stories of clean EMGS transitioning into dirty EMGS, so I feel another EMG is warranted. If this EMG comes back being clean Does anyone have any advice as to if a second opinion is warranted? To my knowledge this neuro is not an ALS specialist, so I’m unsure how much I should trust the results if it comes back clean. Any advice would be appreciated. Thanks
I’m a 30yo male who has had twitching for 4+ years and progressive weakness in my right forearm and calf over the past 1.5 years. I’ve had clean EMGS (2016, 2018) from two separate neuros and have set another EMG for next week. I recently saw the neuro in November as a follow up from 2018 EMG. Although I told him about the progressing weakness, he told me another EMG was not necessary as the regular neuro test was normal and I wasn’t showing signs of clinical weakness. He measured my calf and forearm and mentioned the right forearm and calf were slightly larger than the left (which is very frustrating because I can see how my forearm muscle has atrophied slightly), another reason not to have another EMG, but said “if you want peace of mind, schedule another EMG” which I have scheduled for next week.
The twitching has been bilateral in places all over my body, but 90% of the times I twitch have been exactly where I see the atrophy in my right forearm and calf. Through my research I know that twitching usually comes after the deterioration of the motor neurons, so I’m perplexed as to why it seems to be flipped for me. I continuously test my right leg strength vs left leg strength, and although I’m able to flex (stand up on my toes like regular calf exercises), there just seems to be less of the muscle being used on the right side. I’m right sided dominant so it’s not making sense why the right side feels weaker.
Thinking about this has been so taxing on me over the past couple years and it hasn’t seemed to get any better.
I’ve seen all the stories of clean EMGS transitioning into dirty EMGS, so I feel another EMG is warranted. If this EMG comes back being clean Does anyone have any advice as to if a second opinion is warranted? To my knowledge this neuro is not an ALS specialist, so I’m unsure how much I should trust the results if it comes back clean. Any advice would be appreciated. Thanks