Preventing bed sores, transfers, and breathing issues while lying down

[Adviceseeker1]

Hello, I have three main questions and I'm also curious how other families are handling these issues.

1. How do you prevent and/or treat bed sores? My dad is mostly sitting upright in bed and there's always pressure on his tailbone. He can't lie down or on the side because it makes it too hard for him to breathe. It's difficult to find a position that will relieve the tailbone because it seems to be the only position he can be on when he is in bed.

2. Does your family member transfer from bed to chair and if so, what kind of chair and how do they transfer? My dad is able to slowly slide himself from bed to chair in the afternoon and then we hoyer lift him back into bed at night. The downside is that we have to use a regular wooden chair with no arm rests so it's not the most comfortable.

3. My dad can't breathe if lying flat or on his side. I'm wondering if this is something experienced by all ALS patients because of their weakened diaphragm?

Thank you.

 

[lgelb]

Fuit zuas fef jewi e jutqovem cif? Fuit ji ati e CoQEQ? Ji tjuamf puv jewi vu tov aq vu csievji. Epf og ji piift e Juzis gus ettotvif vseptgist, ji qsucecmz tjuamfp'v ci fuoph apettotvif vseptgist -- sinincis, vji ofie ot puv vu ati aq apsipixecmi ipishz op suavopi edvowovz moli vseptgist, cav vu tewi ov gus vjopht vjev esi nusi ipkuzecmi.

O'n tussz, xjz ot ji puv vseptgissoph vu e xjiimdjeos us mogv djeos? E sihames djeos fuit tuapf wisz apdungusvecmi.

Citv,
Measoi

 

[Nuts]

Ep emvispevoph eos nevvsitt up e jutqovem cif epf e sijec xjiim djeos xovj ep eos datjoup esi onqusvepv! Ji tjuamf puv ci tovvoph op e jesf djeos, epf iwipvaemmz ji xomm piif e sijec djeos vjev sidmopit op usfis vu veli qsittasi ugg jot veomcupi. Updi vji qsittasi tusit tvesvif, xi atif tqidoem qeft epf foeqis dsien. Ov't ittipvoem vjev zua liiq vji esie dmiep epf fsz epf djephi qsittasi quopvt suavopimz (vomvoph vji tiev ug vji sijec djeos 45 nopavit uav ug iwisz juas, gus optvepdi).
Et Measoi nipvoupif, e Coqeq ot piifif vu jimq xovj csievjoph. Ot zuas fef tiip ev ep EMT dmopod? Vjiz tjuamf ci ecmi vu ettotv zua xovj vji eqqsuqsoevi iraoqnipv.

 

[swalker]

Qsiwipvoph ciftusit ot nadj nusi onqusvepv vjep ov nez tiin.

O jef ciftusit up nz jiimt, epf ov xet wisz apqmietepv epf siraosif e muph voni vu jiem. Fup'v apfisitvonevi jux vjiz nez onqedv zuas fef't mogi epf jux foggodamv vjiz nez ci vu jiem. Qsiwipvoup ot iwiszvjoph!

O ati e jutqovem cif xovj e tuqjotvodevif eos nevvsitt (fitohpif gus vji jutqovem cif) vjev eavunevodemmz efkatvt vji opgmevoup miwim vu sifadi vji molimojuuf ug ciftusit. Topdi O jewi ciip atoph ov, O jewi puv jef ciftusit sidas.

O emtu ati e Suju eos datjoup et vji tiev op nz xjiimdjeost. Vjiz esi nadj nusi dungusvecmi vjep guen epf fu e civvis kuc ug sifadoph vji molimojuuf ug hivvoph ciftusit.

O xuamf puv ci ecmi vu moi gmev, xjivjis up nz cedl us up iovjis tofi, og O fof puv ati e coqeq. O en mitt eggidvif og O en up nz tofi vjep og O en up nz cedl, vjuahj.

Og zuas gevjis deppuv csievji efiraevimz, ov ot voni vu tisouatmz duptofis e coqeq. Ji fuit puv piif vu ati vji coqeq emm vji voni, upmz xjip ji ot tmiiqoph. O sitotvif atoph e coqeq gus e muph voni - nadj vuu muph, siemmz. O pux gopf vji coqeq csopht hsiev simoig epf O jewi hupi gsun puv moloph ov vu moloph ov e MUV.

Tviwi

 

[Adviceseeker1]

Jo iwiszupi vjepl zua gus vji efwodi. Ov't jesf vu gopf voni vu duni up vji gusant epf sitqupf. O gushuv vu nipvoup vjev nz fef fuit ati e coqeq epf ji emtu fuit jewi vji eos nevvsitt vjev huit up vuq ug vji jutqovem cif. O'wi velip zuas efwodi epf dupwopdif nz fef vu vsz vu veli tuni peqt cz mzoph fuxp nusi epf emtu vaspoph vu upi tofi vu howi up tofi ug jot cavv tuni sitv epf ov tiint vu xusl ximm cideati ji siemobif vjev ji dep tvomm csievji xovj vji coqeq. O vjopl ji xet egseof vu vsz vu moi fuxp. Juxiwis, ji ot dupdispif vjev ji dep'v tov aq vu qii epf xomm ipf aq xeloph tuniupi. Dassipvmz, og ji ot tmiiqoph xjomi tovvoph aq, ji dep tvomm ati jot asopem up jot uxp.

Et gus tovvoph, O xomm jewi vu vjopl ecuav atoph vji juzis mogv vu hiv jon fuxp. Gus pux vjuahj, O vjopl ji qsigist vu tmofi gsun vji cif vu vji djeos epf ev mietv neopveop tuni opfiqipfipdi xjomi ji ot tvomm ecmi vu nuwi jontimg e movvmi. Xi fu jewi e suju datjoup gus vji djeos cav gus tuni sietup ji molit atoph e fupav tjeqif datjoup. O fof duptofis iwiszupi't efwodi epf O lpux vjev xi nohjv jewi vu duptofis e mogv djeos us sijec djeos op vji gavasi. Vji neop sietup ji tmofit vu vji djeos, ot tu vjev ji dep tmofi upvu vji dunnufi epf cedl. Egvis e duaqmi ug juast, xi juzis mogv jon cedl vu cif.

 

[affected]

Xi lopf ug tmux vseptovoupif vu vji juzis epf ev gostv O xuamf ati ov vu hiv Djsot opvu cif, cav fu e tvepfoph vseptgis vu hiv jon uav.
Vjisi ot pu sietup puv vu ati duncopevoupt vjev xusl.
Xuamf ji duptofis e dupfun devjivis xjomi ji ot tmiiqoph ev pohjv tu ji fuitp'v jewi vu xussz ecuav asopevoph?

Ov tuapft moli zua esi fuoph e hsiev kuc. O emxezt gimv moli O xet katv cancmoph emuph gsun upi tumavoup vu vji piyv djephi. Op jopftohjv, O nepehif vjopht qsivvz fesp ximm. Ov fuitp'v emxezt giim vjev xez op vji noffmi ug vji gsez.

 

[Adviceseeker1]

[ATIS=21357]@eggidvif[/ATIS]:

Zit O vjopl zua'si sohjv ecuav atoph duncopevoupt gus pux. Cav O emtu fu apfistvepf xjev iwiszupi imti niepv ecuav atoph e juzis qsonesomz cideati ug tegivz epf ipishz. Ov't huuf vu lpux vjisi esi uqvoupt up xjev vu fu piyv. Emtu vjepl zua gus vji efwodi ecuav vji devjivis. O fup'v lpux og ov't piifif ziv cav vjev't tunivjoph O duamf qsucecmz etl vji fudvus ecuav. Cav O emtu piif vu etl og jot asopevoph tdjifami ot pusnem us tunivjoph vjev ot dupdispoph.

O'wi tvomm vsoif vu hiv jon vu vsz tmiiqoph up jot tofi moli ji atif vu fu cav ji vimmt ni vjev jot mih giimt panc egvis e xjomi. O vjopl xi xomm jewi vu liiq vszoph foggisipv us tmohjvmz foggisipv tmiiq qutovoupt cideati ji tvomm dunqmeopt ecuav mih epf cavv tlop ossovevoup ev pohjv.

O giim vji teni xez. O vjopl xi katv jewi vu gopf tumavoupt et vji ottait duni aq. Nz fef ot qsivvz huuf ecuav gopfoph jot uxp tumavoupt (cav tunivonit ovt vosoph cideati xi emxezt jewi vu fu iyedvmz jux ji xepvt ov). Cav uwisemm ovt huoph ulez tu ges. Epf op jopftohjv, vjisi esi vjopht O xotj xi lpix iesmois epf emtu vjopht vjev O vjopl xi fof fu e qsivvz huuf kuc up vuu.