issues

  1. Jhettinger

    Diarrhea and constipation issues with ensure /kates farm

    i have tried to make this work but looking at options .
  2. C

    Mucus and breathing issues

    We’re entering a very scary and sad stage of my Dad’s ALS journey. Since October 2022 he’s been having coughing episodes. Several a day, lasting an hour or two at a time. At night is the worst. He’ll wake up gasping for air, choking on mucus. My Mom has to take his BiPap off, sit him up...
  3. michaelsoli

    Left arm and left leg issues

    Hi everyone, I want to say firstly that I greatly respect and appreciate everything you are going through. I don't want to seem insensitive so if I mistakingly am, please forgive me. I have read the top posts extensively and still feel the need to write this down just to maybe have someone...
  4. F

    Update on speech issues

    Sorry for opening a new post but I would like to update my previous One without success...thing have going on in the meantime, I had in September my neuro visit and my first EMG which came back both negative, also some blood exams to roule out myastenia and other immune conditions. Unfortunately...
  5. picciottivincen

    I have a laundry list of recent issues (M25, 175lb.), but anxiety for ALS is the most troublesome.

    I (M25) was born with Hypothyroidism. I say this first because I am sure that my issue is related, but my endocrinologist is adamant it is not and that I need to see a neurologist. This started months ago in May of this year. I suddenly had a feeling I lost coordination in my foot, what...
  6. Nikki J

    Dietitian on nutrition issues

    https://www.youralsguide.com/ask-the-dietitian-about-als.html I like this website for basic sensible information
  7. D

    Peg tube people - anyone still sore/oozing? And bra issues?

    I've had mine since September and it's still oozing stuff daily. (not leaking, just wound oozing) and it's always sore around the peg. hurts! Thinking of getting into the Dr to see if there's anything topical to put on it to help it heal or whatever, Plus I'm a large chested female and HAVE to...
  8. R

    Trying to find answers to hand issues

    Hello, Thank you all for your time. To keep this short I will go right to my concern. My dad was diagnosed with ALS at 73 and passed away at 76, 6 months ago. It started in his right hand. ALS specialist did not think it was familial ALS since my dad was the only person we knew of that had it...
  9. W

    Continuous Issues - Concerned

    I posted back in the summer as I was having some swallowing and muscle weakness Issues. The swallowing issues gradually went away but I had the muscle weakness Issues since and I think they have gotten worse as my arms shake quite a bit when doing things. My EMG back in September was normal...
  10. M

    Bolus feeding syringe and PEG connection issues.

    Hello. I’m new to the forum. It’s nice to have a place where others can relate to your situation and give support. Diagnosed bulbar palsy April 2020. Retired in May 2021 because of inability to speak. Still mobile albeit slow go though with left hand and left frozen shoulder. Got a PEG tube...
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