Ruth33
Member
- Joined
- Jun 15, 2020
- Messages
- 27
- Reason
- CALS
- Diagnosis
- 11/2019
- Country
- US
- State
- MD
- City
- Baltimore
Hello,
I have been too busy to participate in this forum by writing for the most part.
I would typically get into bed at the end of the day and just look at new posts when I got an email saying there was a new post.
Always too tired to log in and respond.
Anyway, my husband passed away in August. the end came faster than expected.
Since January he had been having breathing crises, and was on bipap most of the time.
Breathing got worse and he needed the bipap more.
We went on hospice end of January, which was a good decision.
We had care and medications at home.
He had refused eye gaze and refused feeding tube, hoping he would never need them.
He was able to speak clearly until his last day, he was able to eat normally until a week before he passed.
The last week of his life the breathing got really bad, and O2 dropped dangerously anytime bipap was off.
At that point his short term memory was going.
We were ready to talk about IV nutrition, and the nurse came for a meeting.
That's when he had his final crisis and it was over just like that.
I have been too busy to participate in this forum by writing for the most part.
I would typically get into bed at the end of the day and just look at new posts when I got an email saying there was a new post.
Always too tired to log in and respond.
Anyway, my husband passed away in August. the end came faster than expected.
Since January he had been having breathing crises, and was on bipap most of the time.
Breathing got worse and he needed the bipap more.
We went on hospice end of January, which was a good decision.
We had care and medications at home.
He had refused eye gaze and refused feeding tube, hoping he would never need them.
He was able to speak clearly until his last day, he was able to eat normally until a week before he passed.
The last week of his life the breathing got really bad, and O2 dropped dangerously anytime bipap was off.
At that point his short term memory was going.
We were ready to talk about IV nutrition, and the nurse came for a meeting.
That's when he had his final crisis and it was over just like that.
