RMuoio
New member
- Joined
- Jan 25, 2025
- Messages
- 5
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- CA
- City
- Merced
A few months ago, I started a thread, but that thread has since closed. I wanted to provide an update for those who might experience symptoms similar to mine.
In summary, I had — and still have — twitching throughout my entire body, from head to toe, including my tongue. Symptoms progressed from a twitching finger to body-wide twitching in the span of three weeks. (For a more detailed description, please refer to my earlier thread.) I had all sorts of bloodwork done, and everything returned as "normal." Therefore, I set out to get further tests.
To make a long story short, I got an MRI and an EMG/NCS. The MRI was performed at Community Medical Center in Clovis, CA, and the EMG/NCS was performed at UCLA by a neuromuscular specialist. The MRI was clear, meaning I don't have MS. The EMG/NCS was also normal, aside from indications of mild (left) ulnar neuropathy, which, obviously, would not be the cause of body-wide twitching.
The conclusion reached by both the UCLA neuromuscular specialist and the UCLA neurologist who referred me to that specialist is there are no indications of a motor neuron disease. Benign Fasciculation Syndrome (BFS) is the likely diagnosis, according to the original neurologist who reviewed the EMG/NCS report, though I don't believe I have received any "official" diagnosis. I also don't know whether BFS would be attached to my medical history as an official diagnosis. I will learn more during the follow-up I have in a little over a month.
I still have twitching, and it can keep me up at night. But that's a small thing. I am very grateful.
In summary, I had — and still have — twitching throughout my entire body, from head to toe, including my tongue. Symptoms progressed from a twitching finger to body-wide twitching in the span of three weeks. (For a more detailed description, please refer to my earlier thread.) I had all sorts of bloodwork done, and everything returned as "normal." Therefore, I set out to get further tests.
To make a long story short, I got an MRI and an EMG/NCS. The MRI was performed at Community Medical Center in Clovis, CA, and the EMG/NCS was performed at UCLA by a neuromuscular specialist. The MRI was clear, meaning I don't have MS. The EMG/NCS was also normal, aside from indications of mild (left) ulnar neuropathy, which, obviously, would not be the cause of body-wide twitching.
The conclusion reached by both the UCLA neuromuscular specialist and the UCLA neurologist who referred me to that specialist is there are no indications of a motor neuron disease. Benign Fasciculation Syndrome (BFS) is the likely diagnosis, according to the original neurologist who reviewed the EMG/NCS report, though I don't believe I have received any "official" diagnosis. I also don't know whether BFS would be attached to my medical history as an official diagnosis. I will learn more during the follow-up I have in a little over a month.
I still have twitching, and it can keep me up at night. But that's a small thing. I am very grateful.
