Idaho2790
Distinguished member
- Joined
- Dec 22, 2017
- Messages
- 150
- Reason
- PALS
- Diagnosis
- 01/2018
- Country
- US
- State
- Idaho
- City
- Leadore
I was diagnosed with PBP back in January of 2018 and it was updated to just ALS in February of 2019. Although I can't swallow or speak, the worst of this seems to be excess saliva. I have taken two drugs, a patch, and drops under the tongue. None seems to have helped including Botox shots given three months ago. I rely mostly on Bounty Paper towels to sop up this gross mess. Lately I'm choking lots and my mouth feels grainy since I can take no liquid by mouth. I'm wondering if any of you have had similar problems. Cloth handkerchiefs don't seem to control this like paper towels do, but I'm concerned that I'm maybe making this worse instead of better. Will appreciate any comments.