ALS or some other MND?

Status
Not open for further replies.

Nikki J

Moderator
Joined
Mar 22, 2012
Messages
7,750
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
Where is the emg summary. That is the ncs summary in the text
 

IssuesInOhio

Member
Joined
May 3, 2019
Messages
26
Reason
Learn about ALS
Diagnosis
00/0000
Country
US
State
OH
What I don’t understand is how I could have a very thorough EMG just 6 weeks earlier on the same muscles and it be clean. This worries me bc of it was a back injury it would have shown on the first EMG?
 

KarenNWendyn

Forum Supporter
Moderator
Joined
Jul 29, 2017
Messages
2,619
Reason
PALS
Diagnosis
07/2017
Country
US
State
OR
There you go. Normal in 16 of 22 muscles, suggestion of mild lumbar radiculopathy, no mention of motor neuron disease. That’s great!

I can’t answer your other question. You could ask the neurologist.
 

affected

Guru status reached
Joined
Apr 26, 2013
Messages
11,892
Reason
Lost a loved one
Diagnosis
05/2013
Country
OZ
State
home
Oh that's a fantastic result and the summary is really clear - not an ALS EMG, but something that can be addressed and something mild. You need to discuss this with your neurologist and make a plan going forward. I hope you celebrate this, we would all love to get this result!
 

IssuesInOhio

Member
Joined
May 3, 2019
Messages
26
Reason
Learn about ALS
Diagnosis
00/0000
Country
US
State
OH
Thank you for your responses. I am hoping the MRI on my lower back will confirm and I can put this behind me.
 

Nikki J

Moderator
Joined
Mar 22, 2012
Messages
7,750
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
It can still be your back and not show on mri
 

Bestfriends14

Forum Supporter
Senior member
Joined
May 7, 2017
Messages
683
Reason
CALS
Diagnosis
05/2017
Country
CA
State
Alberta (AB)
Here's a kind word of advice for you: You do not have ALS- not now and not since 2008 since you started looking for it- so you should be putting this ALS thing behind you regardless of what the MRI shows. No one but you thinks you have it. Life is too precious and short to go chasing terminal illness, especially the most cruel kind, so be grateful for your health and cherish the life you've been given. You're pretty lucky to have something so totally minor as an L5 radiculopathy.
 

IssuesInOhio

Member
Joined
May 3, 2019
Messages
26
Reason
Learn about ALS
Diagnosis
00/0000
Country
US
State
OH
Here's a kind word of advice for you: You do not have ALS- not now and not since 2008 since you started looking for it- so you should be putting this ALS thing behind you regardless of what the MRI shows. No one but you thinks you have it. Life is too precious and short to go chasing terminal illness, especially the most cruel kind, so be grateful for your health and cherish the life you've been given. You're pretty lucky to have something so totally minor as an L5 radiculopathy.
I appreciate the advice and reassurance although I am not confident based on the progression I am experiencing, its not good. In any case, I wont be back here unless I actually get a diagnosis. Thank you for the input, responses, and reassurance. God bless.
 

IssuesInOhio

Member
Joined
May 3, 2019
Messages
26
Reason
Learn about ALS
Diagnosis
00/0000
Country
US
State
OH
Hello. I had a recent clinical exam with a very experienced neuromuscular specialist at a very reputable hospital. Dr. spent about 2 hours with me. At the end of the exam Dr. told me the exam was relatively normal. A few weeks later, I looked at the notes online and it appears my reflexes in my knees were +3 and my left pinky was 4/5 strength. Wouldn't that be abnormal and why would the neuro say normal?

My issues have progressed significantly. My right neck is sore when I look upward for over a month, my right arm is sore and has tremors upon exertion, the backs of my shoulders and between my shoulder blades have lost muscle, and I am terribly sore every morning just about everywhere. I still have the faciculations as well, they have become more focused in areas where I seem to be losing muscle. Left foot, shoulders, back, neck. My shoulders, my right neck, and right wrist feel sprained when I move them. Is a feeling of being sprained or pain an early symptom of ALS? I read that pain isn't a symptom but then I often read stories where people initially report pain as a symptom?

I have a 3rd EMG this year coming up later this month with that same doctor that just did the clinical. Having an EMG in May that was totally clean beside twitching, then a abnormal EMG in July that they say is caused by lower back issues, I insisted on a 3rd to put this all to rest one way or another. I am worried though, I feel something progressing in my body and I am worried about what they will find on this next EMG.
 

KarenNWendyn

Forum Supporter
Moderator
Joined
Jul 29, 2017
Messages
2,619
Reason
PALS
Diagnosis
07/2017
Country
US
State
OR
I had a recent clinical exam with a very experienced neuromuscular specialist at a very reputable hospital. Dr. spent about 2 hours with me. At the end of the exam Dr. told me the exam was relatively normal
You are good to go. If this “very experienced neuromuscular specialist at a very reputable hospital” couldn’t reassure you, then it’s not likely that random strangers on the internet are going to do any better,

3+/4 reflexes is a normal variant for many people. The pinky is a weak finger anyway, so that’s not a significant finding. If you would please reread the “read before posting” sticky, you would know that pain and “a feeling of being sprained” have absolutely nothing to do with ALS.

We’ve tried to address your concerns and answer your questions many times in this 4 page thread. It’s time for you to let go of ALS once and for all, celebrate your life, and work on your health anxiety.
 

Nikki J

Moderator
Joined
Mar 22, 2012
Messages
7,750
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
ditto to what Karen said. Exactly what I was typing but she is faster than I
 

Bestfriends14

Forum Supporter
Senior member
Joined
May 7, 2017
Messages
683
Reason
CALS
Diagnosis
05/2017
Country
CA
State
Alberta (AB)
Please seek psychological help for your nosophobia disorder. You have been chasing this disease for far too long. I'm sorry to tell you, but your are not going to be diagnosed with ALS, no matter how much you are looking to. You simply do not have anything that indicates you do. It's probably time to let it go. Go live your life; only you can choose how you spend your time. The days are long but the years are short. Remember that and be thankful for the life you've been given. If you are willing and able to, that is
 

lgelb

Forum Supporter
Moderator
Joined
Nov 5, 2009
Messages
7,685
Reason
Lost a loved one
Diagnosis
09/2009
Country
US
State
WA
As others have said, you are good to go, so I'm closing this thread.

Ask your doc about PT for the soreness -- weak muscles due to lack of exercise or the right exercise, often a source of localized or referred pain, can be strengthened. Muscles that have lost their connection to the nervous system due to ALS cannot be. Many people with lower back issues find improvement with PT. When you see results, you will see that you do not have an MND.

Stay away from these forums and any others that feed your groundless fears, and, as others have said, seek help for your health anxiety if you cannot get past your fears, before they ruin your life.

Best,
Laurie
 
Status
Not open for further replies.
Top