Nikki J
Moderator
- Joined
- Mar 22, 2012
- Messages
- 16,459
- Reason
- PALS
- Diagnosis
- 04/2014
- Country
- US
- State
- MA
- City
- Boston
ALS remissions are extremely rare. Dr Bedlack studied them and after extensive research found reports of 22 cases including 2 of his own patients. Some of the 22 may have been misdiagnosed. There is a theory that some people have resistance to ALS as others do to HIV. This is also believed to explain why some genetic carriers in highly penetrant strains do not get ill.
Others may have responded to some treatment. Nelda Buss being a famous case.
Plateaus are more common than remissions.
22 reports found by a neurologist actively searching records and hooked into the ALS community means this is exceedingly rare. Such cases would not go unreported
Others may have responded to some treatment. Nelda Buss being a famous case.
Plateaus are more common than remissions.
22 reports found by a neurologist actively searching records and hooked into the ALS community means this is exceedingly rare. Such cases would not go unreported