support

  1. C

    Plans and PWC "training" for both of us!

    Just wanted to post for some advice on two developments here with us - and, as always, thanks to all of you for your posts. I read everything and your sharing and generosity is such a grand help, even when i'm just "lurking!" So on to the news - and advice request. We got mom's PWC (with head...
    • Ceelea
    • Thread
    • ability advice als back chair driving friend pwc support travel wanted
    • Replies: 13
    • Forum: Current caregivers
  2. Tedstehr

    Sad to be here, happy to know you are here

    In January, I went for a walk when I was in Chicago for work. I was alarmed to feel my right foot drop as I walked. Nowhere in my imagination did I think it would be ALS. I got a neurologist appointment and he did some tests and sent me for first a neck and then head MRI. The report stated that...
    • Tedstehr
    • Thread
    • als children clinic emg family foot foot drop heart immediately kids life love mri neurologist sad support symptoms tests work young
    • Replies: 22
    • Forum: New members
  3. chally

    VA support group

    My Cals and I are at VA support group in Clarksburg WV This group meets every three months. We both like it and get a lot from it. If a vet center near you offers this I highly recmmmend going at least once. Love ya all Chally
  4. L

    Hectic 5 weeks - followup

    While I haven't posted recently, I have followed many of the threads. All of the posts are so beneficial and at the same time overwhelming. Anyway after another 8 weeks, I'd like to give an update on our situation. The summer heat and my slow healing foot has kept me from overworking and...
    • Larrytbm
    • Thread
    • back bed cals driving early eating family foot healing hope ice lift peg problem ramp support trilogy trip update
    • Replies: 1
    • Forum: Current caregivers
  5. C

    Coconut Water

    Thank you to all for your support and time to help everyone in the struggle with this disease. You are the best! Wondering if anyone has incorporated pure organic coconut water into their PALS diets and if they experienced any adverse affects. Thanks and God Bless!
  6. Kristina1

    in person support groups

    Sorry in advance that this is long. I had Clinic today, and it so happened that at the same time as my visit the local ALS association support group was going on (they meet in the conference room at my ALS Clinic). Since there was a delay between seeing pulmonary and waiting for neuro they...
    • Kristina1
    • Thread
    • als cals clinic conference crying diagnosed diagnosis early falling grief newly diagnosed support wanted
    • Replies: 7
    • Forum: People with ALS (PALS)
  7. M

    Radicava / Edavarone - DENIED!! Help?

    Hi! I was newly diagnosed in March 2017, but problems started around Aug or Sept 2016. So I'm less than 1 year in and doing ok for now, but yes, I'm declining. Anyway, I was hopeful to go to my 2nd ALS clinic visit because I thought I could get Radicava. My clinic date was 8/4. My doctor said...
    • mariposa13
    • Thread
    • als back clinic clinical clinical trial diagnosed fvc heart helpful information medical newly diagnosed problems radicava support treatment trial
    • Replies: 29
    • Forum: General discussion about ALS/MND
  8. C

    Non-dairy Milk Options for Shakes

    Thank you everyone for all of your continued support. I am currently looking to supplement my PALS diet with an all natural nutritional shake powder. What would be the best form of milk (dairy or non-dairy) to use for the mix? Any guidance is very much appreciated.
  9. B

    Awaiting diagnosis

    Hello everyone, introducing myself here and seeing if anyone here can offer some help. I'm in desperate need. I'm a 34 yr Male. I apologise in advance for the long post. Things started around 3 weeks ago while I was away on holiday. I felt that my right hand was strange, and unable to...
    • Bailey360
    • Thread
    • anxiety back brain breakdown cramps denial diagnosis family fasciculations fingers food foot headache holiday hope night nose problem reading scared support swallow swallowing symptoms twitches worried wrong
    • Replies: 4
    • Forum: Could this be ALS?
  10. mbg1977

    Sativex Medical Marijuana

    has anyone tried Sativex?? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5270417/ Medical Marijuana | ALS Worldwide
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