support

  1. L

    Update - 2nd Abnormal EMG

    Hi folks, I did try go back and post in my original thread (took some searching) but its been closed. Decided to give an update and ask some questions, if I may. Maybe someone was following my story Anyway, I've since been to my second neurologist, a neuromuscular specialist in Manhattan (at a...
    • lollypop
    • Thread
    • age als? back battery clinical diagnose diagnosis dihals emg falling fatigue fingers is this als life mri muscle neurologist questions story support symptoms test timeline twitches update weakness work
    • Replies: 5
    • Forum: Could this be ALS?
  2. M

    Doubts after 1 year!

    Hi everyone, After 1 year suffering worrisome symptoms that could be linked with ALS, I have took a clinical neuro exam without any patological reflexes and without clinical weakness. On the other hand, I keep on cycling (journeys of 82 km at 22kmh in average) and running (in spite of my right...
    • Marius
    • Thread
    • als clinical diagnosis onset questions running support symptoms weakness
    • Replies: 3
    • Forum: Could this be ALS?
  3. Scotiaspirit

    Feeling of hands around the neck

    I require more support for my neck muscles now. Spent three weeks in hospital in June with pancreatitus and enlarged spleen (it happenned just a week after getting my button inserted). I been getting bold headaches in the back right quadrant in my head. My neck muscles are weakening and I get...
  4. tripete

    Equipment Recomendations

    As things progress more and more gadgets are needed. I have lost most of my muscle control to hold in bowel movements or to push them out. Is there a Portable Bidet that people use when out? If so please recommend one. I have lost a lot of my trunk and neck strength and end up leaning/falling...
  5. N

    Tips on dealing with MND and Dimentia

    Hello all. This is my first visit to this forum and I'm badly need of some caregiver support. I am currently in a foreign country taking care of my aunt who is diagnosed with Motor Neuron Disease and Dimentia. She cannot speak, can barely swallow, and is starting to lose the ability to walk. Her...
    • nicolettelady
    • Thread
    • ability caregiver diagnosed dimentia family frustrated mnd motor neuron disease support swallow
    • Replies: 1
    • Forum: Current caregivers
  6. E

    A Night With Neale Daniher for MND Fundraiser

    Hello Geelong, Melbourne and surrounding areas A Night of motivation, inspiration, hope, love and support when MND sufferer visits Geelong as the guest speaker for our MND fundraiser. The 2016 Melburnian of the Year Neale Daniher will talk all things "The Big Freeze" which is supported by the...
    • EBVIN
    • Thread
    • ball fundraiser hope info love mnd night questions research support wes
    • Replies: 0
    • Forum: Off topic everything
  7. H

    Recently diagnosed

    I have never posted in a forum or participated in one. I am sitting here tonight unable to sleep. In in a state of great sadness and despair. My husband is sleeping and i know i could wake him but he's under such stress and strain of this I don't feel as if I can burden him with this i was...
    • Hopeful63
    • Thread
    • als chair diagnose diagnosed diagnosis fatigue friend heart lead life lonely love power power chair sad scared sleep stress support symptoms van wanted weakness
    • Replies: 11
    • Forum: Newly diagnosed
  8. J

    In need of moral support

    Hello, I am new to this forum. I have been reading a lot of the threads and it seems like all of us CALS are dealing with pretty much the same things. I am the main caretaker for my mother, Audrey. My brother and I moved in with her after my father passed away a little over a year ago. Up...
    • jenalsdaughter
    • Thread
    • ability brother cals caretakers catheter chair father love reading support venting walker work
    • Replies: 9
    • Forum: Current caregivers
  9. Inventor

    Multi language support for the supplement wiki

    I installed a language pack that will enable anyone to create a parallel page of the Supplement wiki in their own language. Mediawiki offers a pretty slick platform for translating pages. I started work on the Finnish language version, but the choice of additional languages is unlimited.
  10. R

    Tobii Dynavox I-15+, Eye Gazer / Computer With Stand and Case for sale /LOWERED PRICE

    DISCRIPTION: Speech generating device that enables effective augmentative and alternative communication in all forms. Tobii Dynavox I-15+ is large screen, eye controlled speech generating device. It’s rugged design, unparalleled power management, support for touch and gaze input are just a few...
    • razgorsek
    • Thread
    • aac communication computer access design dynavox eye father for sale keyboard power sale support tobii tobii dynavox tobii dynavox i-15 tobii dynavox i-15+ voice worldwide
    • Replies: 0
    • Forum: Used ALS equipment for sale
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