Ceelea
Active member
- Joined
- Mar 17, 2017
- Messages
- 39
- Reason
- Lost a loved one
- Diagnosis
- 03/2017
- Country
- US
- State
- VA
- City
- Orange
Just wanted to post for some advice on two developments here with us - and, as always, thanks to all of you for your posts. I read everything and your sharing and generosity is such a grand help, even when i'm just "lurking!"
So on to the news - and advice request. We got mom's PWC (with head array controls, since she has very little use of hands and arms) and the learning curve is a monster! (Yes, i hopped in and tried it and it was hard to do!) It has attendant controls on the back for me to learn too - so i'm practicing, but everything seems backwards! Anyone have any suggestions for how to build up pwc driving skills? At this point we're just doing practice, practice practice.
Although to be frank, that's difficult -- she can't get comfortable in the chair - we have the provider coming back next week for adjustments, but after some practice, she reports an aching neck and an inability to get comfortable - is this part of the adjustment process? I've scanned through old posts but can't seem to point myself in the direction of advice that 'fits'
The third part of this is wondering if we -- no HOW we -- get to a comfortable use point of this in two weeks. Because in a fit of indulgence and audacity mom booked a cruise. so we're trying to get all the travel arrangements just right and make just 'enough' advance plans for fun without over booking. Did i mention this will be her first flight since als (she's a seasoned traveller before)? or that none of us have ever been on a cruise? It's a 'small" cruise ship, no tinder ports, on a line reviewed with high customer service, so we have good support. With 4 of us going (mom, her best friend, me and her aide), and mom unable to use grab bars we are in a suite, not an HC cabin, and we've had GREAT service so far from Special Needs at Sea. Still, Fools go ... (and we're no angels)!
Any advice about pwc training, adjustments, comfort, flying or cruising would be so appreciated. I see-saw between excitement and panic amid lots of loops around the living room behind the pwc!
Thanks so much for any input you can share.
Cee
So on to the news - and advice request. We got mom's PWC (with head array controls, since she has very little use of hands and arms) and the learning curve is a monster! (Yes, i hopped in and tried it and it was hard to do!) It has attendant controls on the back for me to learn too - so i'm practicing, but everything seems backwards! Anyone have any suggestions for how to build up pwc driving skills? At this point we're just doing practice, practice practice.
Although to be frank, that's difficult -- she can't get comfortable in the chair - we have the provider coming back next week for adjustments, but after some practice, she reports an aching neck and an inability to get comfortable - is this part of the adjustment process? I've scanned through old posts but can't seem to point myself in the direction of advice that 'fits'
The third part of this is wondering if we -- no HOW we -- get to a comfortable use point of this in two weeks. Because in a fit of indulgence and audacity mom booked a cruise. so we're trying to get all the travel arrangements just right and make just 'enough' advance plans for fun without over booking. Did i mention this will be her first flight since als (she's a seasoned traveller before)? or that none of us have ever been on a cruise? It's a 'small" cruise ship, no tinder ports, on a line reviewed with high customer service, so we have good support. With 4 of us going (mom, her best friend, me and her aide), and mom unable to use grab bars we are in a suite, not an HC cabin, and we've had GREAT service so far from Special Needs at Sea. Still, Fools go ... (and we're no angels)!
Any advice about pwc training, adjustments, comfort, flying or cruising would be so appreciated. I see-saw between excitement and panic amid lots of loops around the living room behind the pwc!
Thanks so much for any input you can share.
Cee