positioning

My PALS thinks we all might benefit from sharing our "day in the life" stories, that is, how does each PALS spend a typical day? If we share this information, maybe we can benefit from knowing some ways that other people manage their time. For example, here's our typical "day in the life"...

I write in my notebook an then cannot remember if I ever even posted so this is from Jan. 25. :confused: Hello everyone. I have been focusing on the bed positioning thread. My Pals has had new difficulties especially with bed positioning. Phil still has use of his legs. His upper body is...

I still can't get my PALS into the hospital bed he insisted on having in place of the first hospital bed we got. He does have a lot of shoulder pain, but my concern is his bottom is just sagging bits of flesh and is going to start breaking down so I have to get him off it. So I'm looking for...

I've got a dress high toileting sling by Invacare that rarely seems comfortable. At times it is crushing my chest, making breathing more difficult on my bottom is slipping lower while the leg straps start rising to my knees. Anybody else have one of these? Any suggestions? Thanks.

My life partner of over 13 years, Michel, passed away on Friday, April 5, 2013. His first symptoms showed two years ago. His case was one of the most aggressive his neurologist had seen. But through it all, he was brave and strong and proud. We spent the last 6 months enjoying life, the summer...

Its amazing how ALS creeps around like its going to take away my sister and changes its mind. I sure thought she was leaving here back in august and september. She is actually doing way better and breathing isn't the big issue anymore. Mucus seems to be the battle now. We have had a couple...

I had the Diaphragm Pacing System (DPS) implanted on Wednesday April 11 and I thought I would share my experiences here for those who are interested. While researching for my own decision I soaked up everything I could find here and elsewhere on Al Gore's invention but I still wished there was...

My husband gets up early and stays up late. That would be fine if we were "normal" and didn't have a kid. I think I'm putting him to bed, but no, he wants this gadget or that to mess around with on the computer (which is very difficult for him and he needs my assistance). I have to move all...

Hey all, Sorry I haven't had time for an update. I am typing this in between feedings, suctioning, trache care, body positioning, bathroom needs, bathing, meds, etc. We are finally home from Duke. Life has been almost a nightmare. My two week 24 hour nursing allotment has been more like 8 or...

hi, i've enjoyed this informative site, this is my first post, just wondering when a good time would be to get in a hospital type bed? i love my bed but finding it harder to get and stay comfortable at night. i still have use of my legs indoors, and partial use of one arm. i do get leg and...