Pkmado
Active member
- Joined
- Aug 11, 2012
- Messages
- 49
- Reason
- CALS
- Diagnosis
- 07/2012
- Country
- US
- State
- CT
- City
- Niantic
I write in my notebook an then cannot remember if I ever even posted so this is from Jan. 25.
Hello everyone. I have been focusing on the bed positioning thread. My Pals has had new difficulties especially with bed positioning. Phil still has use of his legs. His upper body is becoming progressively weak. Swallowing difficulties, just purchased a dysphasia cookbook. Can no longer feed himself, drinking that beer out of a straw. His arms almost completely useless. These we can work on together.
He is able to turn in bed with great difficulty. He turns over and over all night. Each turn involves untangling him in the bed sheets the hoisting his hands up with his knees to support his head. He has a molded pillows to help with that.
The time has come for a better system. I have read and re read posts but feel lost in a sea of infinite possibilities. He is on regular sheets now. He is so thin I think he may need something softer. I am assuming the bed itself will be costly. This is ok we can afford this. I just want to be sure the right choice is made. Sleep Number? Probed freedom bed?
Hello everyone. I have been focusing on the bed positioning thread. My Pals has had new difficulties especially with bed positioning. Phil still has use of his legs. His upper body is becoming progressively weak. Swallowing difficulties, just purchased a dysphasia cookbook. Can no longer feed himself, drinking that beer out of a straw. His arms almost completely useless. These we can work on together.
He is able to turn in bed with great difficulty. He turns over and over all night. Each turn involves untangling him in the bed sheets the hoisting his hands up with his knees to support his head. He has a molded pillows to help with that.
The time has come for a better system. I have read and re read posts but feel lost in a sea of infinite possibilities. He is on regular sheets now. He is so thin I think he may need something softer. I am assuming the bed itself will be costly. This is ok we can afford this. I just want to be sure the right choice is made. Sleep Number? Probed freedom bed?