life

It's been 5 and a half weeks since Mom passed and it has been such a whirlwind, but I've been thinking about the folks here with such gratitude. (I've typed five summaries of these last weeks and keep deleting them. Suffice it to say that they've been busy and good and sad and maybe I'm...

Hi everyone, I want your opinions in my case. I am a 25 yo male, living in Netherlands and for the past 2 months i have been experiencing some symptoms. I know it is almost impossible to have als at my age with no family history, but the anxiety these past months is creating other problems in...

Dear All, Thanks in advance for your time it really is mucj appreciated. I wish all PALS the very best in the toughest of fights. I posted a wee while back but have been unable to post again on my thread. Thought I'd post an update and ask for some thoughts on symptoms if not too much...

Hi, For the last few months I've had a real deterioration in my health where I've felt really bad - a lot of fatigue, pins, needles in extremeties, weakness, spasms and twitching in arms and legs, buttocks - al over now. Have had EMG done - there is diminished conduction in both arms one more...

I have already read the sticky note but I just have some questions I need answering. Sorry if this seems long or you have read this before, I just really want to make sure. My symptoms: -Muscle twitching all over body (Legs, Back, Arms) I will say it started a few days ago and I was really...

I’ve been with my partner for almost five years but we don’t live together and don’t plan too. Only a few months ago I experienced the sudden unexpected death, by fentynol, of my eighteen year old daughter. I’m still trying to cope with that. My partner has always been unable to be supportive...

I’m posting here because I don’t know where else to go. I have read the stickies, and I am very much struggling after being told by a neurologist that my EMG was abnormal today. I’m a 32 year old mother of two beautiful boys (1 and 3 years old). Along with my husband, they are my whole world. I...

It's been close to 2 years since My Liz was taken from us after a 5 year ALS battle. And yes I have started a new life with a wonderful new Wife. The last 3 months have been horrible. I can't shake the feeling I'm cheating on Liz and shouldn't be happy. Thankfully my 2 children are not only...

I hope this post is appropriate for this section, but I wanted to briefly share a personal reflection of my experience during my father's battle with ALS and what I hold dearest to my heart after losing him. The topic of ALS can be a sad discussion, it is sad. But, as odd as it sounds, after I...

I am not sure if any other PALS have this symptom, but I have become addicted to animal shows on Netflix. I have searched through the drug sheets on Baclofen, Edaravone and Riluzole and it mentions nothing about this debilitating adverse affect. I first noticed it a few weeks ago. I decided to...