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  • Sorry for the delay in responding... I know the exact feelings you are going through, and it’s so incredibly difficult. I got my appointment with the neuromuscular specialist on July 9th. Another 3 months from now. It’s going to be a long wait.

    I really hope that your symptoms haven’t progressed at all in the past 3 weeks... I know I wake up every morning and hope that nothing has gotten worse.
    Hi, I saw your post got deleted but see you are also in this terrifying situation as me with small kids. I pray we are both ok!
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