hearing

Devil attacks with Motor Neurone Disease The devil has this accursed horrible disease He sneaks it into lives with such relative ease It eats away deteriorates peoples nerve ends Untold pain and great suffering this ever lends It gradually takes away absolute bodily use Make no mistake a...

God and Motor Neurone Disease What do we do and just what do we pray When God made man higher than the Angels I say Yet God has also gave us illness and disease Some are truly terrible and take away mans ease For 30 plus year I’ve walked talked with God now Today find myself feeling overlooked...

Lisa Beamer on Good Morning America.....If you remember she's the wife of Todd Beamer who said "Let's Roll" and helped take down the plane over Pennsylvania that was heading for Washington, DC back on 9/11. She said it's the little things that she misses most about Todd, such as hearing the...

I have not been on this forum for a while due to our busy life. Someone from this forum said I would get more feedback if I posted here so thanks for that information. I have been caring for my husband for about 2 years now that he has needed a lot of help but he was diagnosed with ALS when our...

It started with me as a teen back in the 1970’s I broke my right index knuckle several times over during the years. Each winter my right hand was no good in the cold weather the finger was in effect dead in 2009 the knuckle got so bad that I could no longer even write or sign my name and had...

Progressive bulbar palsy (PBP) MND My right leg is no longer walking It’s a machine that now does my talking Mr right arm is of no use at all I could not answer a telephone call And this is sadly still just the start A thought impressed I must impart They say I’m sure to get much worse Until...

Ever since my mom's last Dr appoint and found out she is getting worse all of the sudden she is bombarded w appoints! Which is good but my dad is using all his vacation time to take her. I wish they could combine them some how. But they tested my mom's oxygen levels and her lungs and they are...

My name is Danny, I'm 19 years old at the University of Central Florida in Orlando and I am on a mission to spread awareness of ALS. I've spent the past 6 months attempting to reach out to the students of UCF in hopes to spread awareness, and by doing so we are hosting an all day Country Music...

Hello forum, My name is Chantelle and I'm a researcher working on a documentary about global health and the pharmaceutical industry -- we are covering a number of topics in the film, such as access to medication, drug development, rare and neglected disease research, etc. I am hoping to get...

Hello forum, My name is Chantelle and I'm a researcher working on a documentary about global health and the pharmaceutical industry -- we are covering a number of topics in the film, such as access to medication, drug development, rare and neglected disease research, etc. I am hoping to get...