looking to speak with ALS patients, caregivers

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chantelleb

New member
Joined
Feb 24, 2012
Messages
1
Reason
Learn about ALS
Country
CA
State
BC
City
Vancouver
Hello forum,

My name is Chantelle and I'm a researcher working on a documentary about global health and the pharmaceutical industry -- we are covering a number of topics in the film, such as access to medication, drug development, rare and neglected disease research, etc.

I am hoping to get in touch with some ALS patients who live in/around Vancouver, BC to learn about their experiences with ALS. I am particularly interested in hearing patient perspectives about the pharmaceutical industry, given the lack of treatments for this disease. Patient perspectives are a critical part of our project, as these are the people who are impacted most by industry and researchers' progress in creating lifesaving drugs and treatments.

If you are interested in getting in touch, send me a message here and I would be happy to send you more details about the project, answer any questions you might have, etc and we can go from there.

Best,

Chantelle
 
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