getting a diagnosis

  1. E

    FALS - Timing of getting a diagnosis

    I'm from a C9 family and now having undeniable symptoms of ALS. I've actually suspected the disease was starting for about 9 months but was so hoping it was in my head or explained by something else. I now know this is not the case. Needless to say I am beyond devastated and have spent much...
  2. B

    trouble getting a diagnosis I need advice

    Its been some time since I posted here, as I thought I finally had a diagnosis but it seems things have changed again. I'll start by giving the backstory on how this all began. Summer of last year I started to experience muscle twitching, rippling, and weakness. I was seen by a gp who was very...
  3. olly

    Note to pals/cals answering in this forum.

    I was going to post in another thread but it has closed,so.....my experience from 5yrs here. #1 Firstly we need this forum,it stops the undiagnosed posting all over the place...the lesser evil. #2 If you dont like reading posts here or it causes negative feelings then please avoid. #3a...
  4. L

    Just wanting answers...

    Hello, I am new to the forum. My symptoms started this past summer. First noticed easy leg fatigue bike riding with my husband. I just couldn't quite keep up with him as normal and had to keep shifting down as my legs would get so tired. Same leg fatigue was happening upon just doing 2 flights...
  5. L

    Frustrated in SD

    Hello, I am a fist time poster. My symptoms started this past summer. First noticed easy leg fatigue bike riding with my husband. I just couldn't quite keep up with him as normal and had to keep shifting down as my legs would get so tired. Same leg fatigue was happening upon just doing 2 flights...
  6. L

    All things considered ...

    All things considered, it could be worse, but I'm stressing out. I lost my job. I have been here nine years and now have 60 days to figure out what to do next. My position was eliminated, but there's another very similar one posted so I will be going for that. This normally wouldn't seem so...
  7. L

    My First Post due to health symptoms

    Hi everyone, I'm Luke, a 32-year-old guy from Portland Oregon. After spending several weeks reading posts at this wonderful forum, I've decided I would like to join. I'm in the process of getting a diagnosis of health symptoms I've been experiencing, and in the meantime, I think it would be...
  8. V

    Scared . . . feeling guilty

    Okay, this forum must get all sorts of hypochondriacs posting "do I have it messages." Problem is, since ALS has no definitive test, one wonders if patients with ALS aren't the most reliable in getting a diagnosis. PCP's seem to brush it off and not even consider it. Here is my situation: I'm a...
  9. StillSteve

    A Hopeful Update

    It's been awhile since I've posted anything, and I don't want to leave a "hit-and-run" impression or only post bad news. (The two threads I started were "Is this PMA?" on May 25 of this year, and "Questions about the progression of this disease" on July 3. I had some mixed reactions, but most...
  10. P

    Advise trying to get diagnosis please

    I have read several stories here about getting a diagnosis. My husband's issues started a year ago, the first symptom that made him react was pain in his left shoulder, leading to loss of movement in his arm, since then he has muscle weakness, twitching, cramping. We did not initially notice...
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