eating

15 weeks ago has noticed I slurred a few times. This when was I talking a word here and there. then again a few weeks later-not anymore that I recall . No one has mentioned it to me. Then 10-11 weeks ago I began to have stiffness arms and calves. It went away in a few weeks. I have felt off...

Pals has been on mainly tube feeds for at least 18 months. 2 cans a feeding 3 times a day. of Isosource About three weeks ago he was complaining to the nurse that he was always feeling bloated. Together we decided to go to 2 feeds of 2 cans. today the Hospice nurse was here and he again...

Good evening, Like many people have posted here before, I am worried about twitching. I have read countless summaries and explanations online about why it is not ALS and is most likely BFS or some other benign condition. In my case, I think it may have something to do with vitamins and...

Hello Everyone, I've been thinking of you all, but wrapped up in our latest medical drama. You might recall that my dad was in the hospital for GI bleeding that was incorrectly diagnosed as Prostate Cancer. Thought that the good news was going to be the turning point, but he has been very...

3 days ago I had my first peg tube inserted. The pain and discomfort is still substantial. Especially when I cough, which is frequently. Also, I have become much weaker throughout my body. Have reduced rang of motion, due to the pain of the tube, and have been having severe muscle spasms...

For the past few days, my PALS has gotten progressively more short of breath. We called the clinic and they have ordered a BiPap. The company is supposed to be calling us this week to set up an appointment, but I don't know when or if we should go to the local ER. He is definitely...

My Pals is steadily losing weight -- 40 pounds since diagnosis in Feb 2014. He still eats by mouth but it is becoming more difficult. I have modified food textures, lots of soups, soft foods and I use the stick blender on many things. He still indulges in an occasional cookie and few chips on...

Hello again... Nothing new from the dr's since we were last there 3/17 when they said my husband had pseudo bulbar palsy (although the report from that day says bulbar palsy and suspecting bulbar ALS) EMG is scheduled for 4/21 The question I have is in regards to swallowing. My husbands diet...

I just found this and thought it sounds rather divine, though I'm not a whiskey girl I thought it could be substituted with baileys or similar. For those PALS getting sick of the same old smoothie, or looking for one to share with their CALS :) Soak some ginger nut biscuits in whiskey ( this...

Today was our clinic. Day and we were told that since his ALS is advanced, that we need to look into hospice sooner than later, and also decide on trach or no trach. Iam still stuck on the word, "advanced stage" does that mean we are in the last stage before he is bed ridden and passes? I'm not...