Aswanson
Active member
- Joined
- Mar 1, 2016
- Messages
- 33
- Reason
- CALS
- Country
- US
- State
- NH
- City
- Wakefield
Hello again...
Nothing new from the dr's since we were last there 3/17 when they said my husband had pseudo bulbar palsy (although the report from that day says bulbar palsy and suspecting bulbar ALS)
EMG is scheduled for 4/21
The question I have is in regards to swallowing. My husbands diet mostly consists of softer foods such as oatmeal, eggs, shakes, soup, chicken nuggets and the like. I get extra protein in everything for him! When he has things that need more chewing such as turkey we had at Easter his jaw muscles got very tired and sore after a while so he had to stop.
He hasn't been able to move food to the back of his throat b/c of lack of tongue movement, I've noticed a lot more so recently, so he will have to use his finger to push/wipe food back out of spots of his mouth to get it there.
Just last night he was eating dinner and took a break...he mentioned that for the past week off and on if the food is bigger or not soft his throat gets tired of swallowing. If this makes sense?
My question is should we continue to modify his food and I know you all will give me some great tips on that or are we getting close to the point of needing a tube? We appreciate all your tips and advise!
Thank you,
Amy
Nothing new from the dr's since we were last there 3/17 when they said my husband had pseudo bulbar palsy (although the report from that day says bulbar palsy and suspecting bulbar ALS)
EMG is scheduled for 4/21
The question I have is in regards to swallowing. My husbands diet mostly consists of softer foods such as oatmeal, eggs, shakes, soup, chicken nuggets and the like. I get extra protein in everything for him! When he has things that need more chewing such as turkey we had at Easter his jaw muscles got very tired and sore after a while so he had to stop.
He hasn't been able to move food to the back of his throat b/c of lack of tongue movement, I've noticed a lot more so recently, so he will have to use his finger to push/wipe food back out of spots of his mouth to get it there.
Just last night he was eating dinner and took a break...he mentioned that for the past week off and on if the food is bigger or not soft his throat gets tired of swallowing. If this makes sense?
My question is should we continue to modify his food and I know you all will give me some great tips on that or are we getting close to the point of needing a tube? We appreciate all your tips and advise!
Thank you,
Amy