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I start to say that english is not my ordinary language but i hope you understand my writing. I have post a question here before and som pictures of my hands whit possible atrophy. I have twitching all over my body and went to a neuro and was getting an EMG in arm, hand, leg and below my...

Hello my friends, The words that you all share and the wisdom that you have spread on these forums has been invaluable. I have been told by a friend and his pastor that I will be there at the right time for someone else that is going through this terrible disease and be able to help them. For...

Hi, It has been some time since I have been on the forum, but last night I had quite a scare and I'm hoping to get some advice. I have been having increasing difficulty with swallowing in the last few months. At my last doctor visit we discussed a peg and I am scheduled for the procedure on...

My husband shouldn't be eating anything by mouth at all, and have only formula tube feeds. He refuses them. I try and he's like no,no. But he chokes every single time he eats anything. He thinks he can just eat a burger,bun, toppings. Or tacos, all. But he chokes and food gets stuck where we...

Howdy all, I was diagnosed about 6 months ago, but have been having speech troubles since January 2015. It's a slow progressing form, and though I seem to have mostly bulbar issues, my doc says it's not bulbar onset. (I have a touch of weakness in my hands, but otherwise am 'fine'.) Anyway...

My pals kept telling me when he woke up that there was plastic in his mouth. I said no there isn't. I said you have dried mucous on your lips (he does every morning, as I clean it up). But he persisted that there was literally plastic. I suctioned him and found like really thing long...

Hello everyone. First of all i want to express my support to everyone here whos been diagnosed with this disease but also to the families having someone with this disease struggling. You guys are strong. Ive read the stickies and my concern is that im dealing with muscle weakness all over my...

Recently I've noticed I've had constipation and twitching in my body, also notice head trauma and numbness in my foot, slurred speech, and partly confused. I notice stiffness, mild weakness in my body and mild pain where my right calf is. I've changed my diet overall by eating more healthy and...

Whew, this disease never slows down, does it? the next installment in the saga of rising blood sugars has Matt's glucose levels rising overnight. The Endo asked for 3am readings, and we've learned that his numbers drop very very low and then rise, which means his body is eating itself, so to...

Hi everyone, I'm a medical student and working on my clinical rotations before graduation next year and I am working with my first ALS patient and wanted to get some advice on speech generating devices that might be helpful for him. He is a 32 year old male, married and has a 2 year old...