Sorry I've been away from the forum for a long time. Two teenagers, one baby, and full time care of my dad (shared with my mom) was tough.. And then... We decided to move from the USA to Finland. It was my husband's idea actually... He dragged us in June 2018 because he thought we could...
So it's coming up to a year now since I've first been on here - you can read my following threads (though I really don't advise this):
Another "Bulbar ALS?" Thread
Ongoing ALS concerns...
I am now a 30-year-old MD currently living in Australia. I know on my last thread I said I...
My PALS can't sip liquids or eat applesauce to get his pills down? I see him struggle now to suck the fluid through the straw and have asked the palliative nurse how he can take his meds if he can't swallow them this way and she said we just don't give them to him if they don't come in a...
Hello dear people,
First and foremost I have to say that I have utmost respect for everyone who replies to the posts of us health worriers - this forum has helped me immensely when looking for information about this terrible illness.
My story is this, I am 28 years old male, I have got a PhD...
getting a diagnosis
Hi everyone. I'm a 44 year old female. On Mother's Day weekend I almost choked on a roll at Bob Evans. I sat there not sure whether to cough it up or swallow it down. That next Wednesday the same happened with a donut. About a week later, one night my entire body felt numb & legs felt heavy and...
Hi guys. I'll start out by saying thanks to anyone that takes their time to read this and/or reply.
I have always twitched (rather infrequently) in my right butt cheek . During a particularly stressful period of time, I was twitching there more and more. I made the oh-so-common mistake of...
This disease is heartbreaking...This past Friday was the last day my dad was able to swallow whole food. It was very rough for him and my mom Saturday accepting the fact that he lost something else. This disease is showing no mercy on him!!! He had trouble breathing last night due to excessive...
First off I'm 23 years old and never thought I would have to go through this. I'm not trying to make this about me, but figured maybe some of you can relate.
My father was diagnosed with ALS I believe about 5 months ago. He has dropped in weight from about 150lbs down to 97 lbs now...
Hello, I'm TerriK, Wife and Caregiver of my Husband diagnosed with Bulbar onset ALS one year ago. He started with syrupy speech in November 2015 and muscle atrophy in his upper body. After numerous tests, MRI's, Blood work, Doppler.........Visits to Neurologists, ENT's, GP.......etc.....we...
Is this normal? Jay says he can't swallow his spit so I have to suction him every few minutes throughout the day. I don't mean to sound selfish but this is making me crazy. Before ALS Jay was a always a spitter and it drove me crazy. If he was outside he would spit nonstop. So I'm wondering...