So, as you know, my mom was going to go to Mexico to compare and weight her options on both sides of the border. She is still there, but will return after Christmas for her clinic day Jan 4th. As of right now, she wants to come and go until she is no longer able to, but has decided she wants to...
My mom went in to get her PEG today. She didn't really want it, but she said okay. I'm not really sure why.
Actually, I know why. After being in denial for so long, she now will do mostly everything I suggest. It's a terrifying responsibility.
I wanted her to get it because I am not ready for...
My symptoms go back About 1.5 years ago and never was scared up until 1.5 months ago. Some things may not even be related to eachother but I always add the just Incase it's a missing puzzle piece. The beginning symptoms seems much more tolerable then where I am as of today.
Almost 2 years ago I...
Hello to this site. First and foremost, I want to say to the people already dx'd that I mean no disrespect in visiting here for more information. I simply am worried to the point of losing my sanity and want help from those who know best.
My symptoms began three months ago with numbness in my...
Hi everyone,
In reading about California's right to die law, I see it went into effect June of 2015.
It states that patient must be able to swallow medication independently. Does anyone know what that means exactly? I already have a G-Tube and have trouble swallowing the smallest pill; like...
I received my prescription for Nuedexta about two weeks ago. I asked my neurologist to prescribe it not as a mood stabilizer, but in an attempt to control my bulbar symptoms -- excess saliva, swallowing, and slurred speech. I'm happy to report that already my swallowing is much improved and my...
Hi all. My PALS is experiencing severe dry mouth that does not go away during the day. He is not taking any medications to decrease secretions. He is not taking antihistamines, etc. He has become a severe mouth breather overnight, in an attempt to get more oxygen. I have purchased Biotine...
Can This Be ALS
Hello,
First of all let me start of by saying that I am very sorry that any of are dealing with this disease. Whether you are a family member, a friend, a caregiver or a PAL, my deepest love and sympathy go out to all of you! I pray for a world without ALS!
I read the...
advice
age
als
als?
anxiety
arm
back
bulbar
bulbar onset
can't swallow
caregiver
early
eye
family
family member
father
fear
foot
friend
hope
ignore
life
onset
please help
saliva
scared
sleep
stress
swallowswallowing
symptoms
test
tests
twitches
twitching
weakness
young
I have had thick, salty secretions in the back of my throat for some time. Some times saliva also gets thick. When saliva is not thick and the secretions in the back (I think they come from the nasal cavity) are not too thick, I can swallow the saliva and it carries some of these thick...
Hey guys! First I would like to tell you a little about myself. I am 23 with a background of horrible anxiety and know I am concerned about als. It all started with a normal twitch in my right arm then lasted all night. Next day it was in my leg, so of course Google confirmed my worst fears. It...