- Apr 12, 2017
- Loved one DX
This disease is heartbreaking...This past Friday was the last day my dad was able to swallow whole food. It was very rough for him and my mom Saturday accepting the fact that he lost something else. This disease is showing no mercy on him!!! He had trouble breathing last night due to excessive saliva and mucus so my mom had to use the cough assist several times. He is on Nuedexta, but I guess some things can only work for so long. His voice is almost completely gone, mostly just a grumble. My mom feels caught of guard with him no longer being able to eat normally. He goes back to the ALS clinic at the end of June and I am nervous about what his lung capacity is now (was at 39%). From what the doctor wrote in his disability paperwork that he only has 6-12 months from dx which was March 2017 and symptoms started December 2016 is seeming very true and real. I know no one knows how much longer, but is progression is so unreal.