bulbar onset

  1. T

    bulbar symptoms?

    Hi all, I'm a 33 yo female and have been fearing ALS for about 10 months now, since I started twitching all over my body. 8 months ago I had an EMG in my right arm and leg, came back normal. 6 months ago I felt like I was having difficulty speaking so I went to my neurologist and he cleared me...
    • Txemer
    • Thread
    • als arm back bed bulbar bulbar onset bulbar symptoms clinical eating emg female neurologist onset sleep speech swallow symptoms symptoms? twitching
    • Replies: 9
    • Forum: Could this be ALS?
  2. K

    PALs Losing Tastebuds?

    Hello, all, Anyone else have the experience of their PAL losing their sense of taste? Today I asked my mother how she liked the new seedless jam I got her. She said she had no idea. She can't taste most of her food. She did not have bulbar onset, but she is starting to have more bulbar...
  3. A

    So worried

    6 months ago I had weakness on my right side, numb tongue, facial numbness, followed by fasiculations in my tongue and my entire body. Fast forward and I have right foot drop burning tongue, difficulty swallowing I just left the hospital after an endoscopy, swallow study and a manometry, clean...
    • Amylife
    • Thread
    • brain bulbar bulbar onset burning clean emg emg foot foot drop mri muscles neurologist onset pain swallowing tongue voice weakness worried
    • Replies: 35
    • Forum: Could this be ALS?
  4. S

    Was EMG performed correctly?

    As a follow up to my previous thread that was closed, I had a clean EMG on Friday. The NCV did end up showing that I have moderate carpal tunnel in my right wrist and mild carpal tunnel in my left wrist. My neurologist also thinks that my hands are just naturally the way they are, he said it's...
    • Silvermaple
    • Thread
    • arm atrophy bulbar bulbar onset clean emg emg hip muscle muscles neurologist onset symptoms thenar tongue wrist
    • Replies: 5
    • Forum: Could this be ALS?
  5. T

    Bulbar als?

    Hi 6 months ago I got very sick lasted a month. Couldn't breathe hard time swallowing and talking. Lost 9 lbs in a week. Got rubber legs. Basically became wheelchair bound because every time I would walk I couldn't breathe. They put me on a ton of asthma meds which made me worse. Testing heart...
    • Tomannie11
    • Thread
    • als als? back bulbar bulbar als bulbar onset eating emg heart hyperreflexia ice meds movement mri onset swallowing symptoms testing tests weakness wheelchair
    • Replies: 15
    • Forum: Could this be ALS?
  6. E

    Worried about Symptoms-Advice Needed

    Thank you all in advance for your time in reading this. I will do my best to keep it as brief as possible. I have read the sticky. I’m 29, stay at home mom of three kids, three and under. About 6 months ago, I noticed some neck stiffness, along with transient pins and needles and numbness...
    • ES27
    • Thread
    • advice age als anxiety arm brain bulbar bulbar als bulbar onset emg kids mri neurologist onset reading speech stiffness swallowing symptom symptoms tests twitching vitamin d wanted worried
    • Replies: 6
    • Forum: Could this be ALS?
  7. N

    My daddy died in his sleep, at home

    And I wasn't there. I spent two months in Poland with him from August to mid October, and then had to come back to the US to work and to bring my kids back to their dad. My father begged me not to leave. He prayed for a quick death, and he prayed for an easy death. At least those two prayers...
    • NotMyDad
    • Thread
    • back breathing bulbar bulbar onset choking cramps crying dad death father kids life onset pain sleep suction work
    • Replies: 12
    • Forum: In memory of
  8. R

    Spoke with a doctor

    I spoke on the phone with a familiar doctor, who didn't seem very concerned after I explained her everything. She didn't even really comment on it other than that she thinks that it's probably nothing and not a condition of any kind. However I've still been feeling super anxious. I read a few...
    • rasmus
    • Thread
    • als als? back bulbar bulbar onset burning cramping cramps dad family food meals mucus onset pain symptoms tongue twitching
    • Replies: 2
    • Forum: Could this be ALS?
  9. A

    Nuedexta and radicava

    My mother found out that she’ll be able to start radicava soon and Medicare is going to cover the entire cost! She also had a feeding tube put in last week at Mass General and it went well. She can still eat relatively normally but gets tired after a while and has lost a little weight. She...
    • AliCat
    • Thread
    • bulbar bulbar onset cost feeding feeding tube improvement medicare nuedexta onset radicava saliva speech
    • Replies: 2
    • Forum: Current caregivers
  10. S

    PEG tube question for women

    Hi, I was diagnosed with Bulbar Onset about 7 months ago. I am still able to eat some things, but they recommended that I get the PEG now, while I’m still fairly fit. My problem is that they situated under my breast, which is large. When I sit, my breast covers it, and it gets irritated. I...
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