bulbar onset

  1. T

    Diagnosis At Last

    Hello everyone. My husband of 30 years was diagnosed 3rd October 2018 of Bulbar Onset/ALS. It was a relief for us all to have a diagnosis as we was wondering all sorts what was wrong with him. He started to talk slowler than usual in January this year, and gradually got worse over the months...
    • Twinkle
    • Thread
    • als bulbar bulbar onset decline depressed diagnosed diagnosis kids lift mobility nurses onset speech voice wrong
    • Replies: 10
    • Forum: Newly diagnosed
  2. A

    Bulbar onset PLS: how long before speech is gone?

    My husband was diagnosed in June with PLS. He had mild speech difficulties (slurring when tired) starting a year prior that have progressed since. He is increasingly nasal and slurred; he must speak each word slowly to be understood. He now has some toe drag with each foot and needs a cane for...
  3. A

    My mother’s diagnosis

    Hello to all, As I’m sure everyone here can understand, I never thought I would need to post on this forum. My only knowledge of ALS was through the ice bucket challenge! My 70 year old mother was diagnosed with ALS at the beginning of August this year. I first noticed something wasn’t quite...
    • AliCat
    • Thread
    • als boston bucket challenge bulbar bulbar onset clinic diagnosed diagnosis emg feeding feeding tube ice ice bucket challenge neurologist neurology onset reading speech stroke vacation
    • Replies: 6
    • Forum: Newly diagnosed
  4. B

    Revisiting the Neurologist

    To preface — I’ve read the READ FIRST posts, so I hope all details below are relevant. 29 year old, smoker for 8 years. About 3.5 years ago I noticed minor tightness in my throat that I payed no attention to at first. Over the course of time I became more aware of slightly labored breathing...
    • BuckInNyc
    • Thread
    • als arm back bfs breathing bulbar bulbar onset clinical cramping diet emg falling fingers hope mnd neurologist onset progression quality of life shortness of breath sleep symptoms test twitching unknown weakness worry
    • Replies: 4
    • Forum: Could this be ALS?
  5. J

    Mother Diagnosed

    Hi everyone, My mother has been diagnosed with ALS 2 weeks ago. she is having a bulbar onset right now having a hard time swallowing, talking and eating. Her Neurologist told me her breathing is good and has a relatively slow progression. She is on Riluzole right now, seems like the progression...
    • Jesse35
    • Thread
    • als breathing brother bulbar bulbar onset diagnose diagnosed eating family neurologist onset problem progression reading riluzole slow progression support swallowing work
    • Replies: 7
    • Forum: Newly diagnosed
  6. L

    Help please on sourcing Nuedexta in Canada

    Hello everyone, I'm new to the forum. My dad has just been diagnosed with ALS, and likely a few years into this devastating disease. Can anyone point me in the direction of how I can obtain the medication Nuedexta? We live in Toronto Canada. He has bulbar onset and saliva and speech is a big...
    • LizE
    • Thread
    • als bulbar bulbar onset canada dad diagnosed nuedexta onset saliva speech
    • Replies: 11
    • Forum: Current caregivers
  7. S

    New symptoms have appeared. Is it bulbar?

    <Mod note: previous thread> Hello again! My symptoms with right hand and right leg weakness are kind of the same, nothing worse, nothing better. What intrigues me is that for three weeks now I have had a lump in my throat feeling and mild dysphagia (feeling food is stuck in my throat and I...
    • sorin
    • Thread
    • age als als? arm bulbar bulbar onset death diagnosis dysphagia food lift lump neurologist neurology onset progressive weakness scared slurred speech speech symptoms tests tongue voice weakness worried
    • Replies: 3
    • Forum: Could this be ALS?
  8. S

    Food and drinks ruining my clothing

    Hi! I have bulbar onset and have started to have real problems with spillage onto my clothes when I eat or drink (mostly when I drink.). Paper towels don’t cut it anymore. Does anyone know how to make or purchase a coverup or bib? Thank you!
    • Sue Drumm
    • Thread
    • bulbar bulbar onset clothes clothing food onset problems
    • Replies: 7
    • Forum: Newly diagnosed
  9. B

    82 year old grandmother diagnosed unexpectedly after Fall

    My 82 year old grandmother was diagnosed August 1st after falling July 19th. When we took her to the hospital to make sure she hadn’t broken anything (which she didn’t). I never imagined this diagnosis. In the ER, she couldn’t hold or lift her right arm at all and she was in able to lift her...
    • Blairefree35
    • Thread
    • arm back bed bulbar bulbar onset clinic confusing diagnosis emg falling lift mobility neurologist neurology onset pain peg preparation speech swallowing test testing transfer walker wheelchair
    • Replies: 3
    • Forum: Newly diagnosed
  10. R

    Bulbar Onset MND

    Hello there, I’m Karen, I’m 53. My problems started a while ago and I have been so confused, upset and angry with doctors since this has all began. I really don’t think I have MND, or maybe I’m in denial but it just doesn’t add up to me. I would really like your opinions and guidance, it would...
    • Renwards
    • Thread
    • age angry arm atrophy back bulbar bulbar onset confused diagnosis emg fasciculations grief info mnd neurologist onset pulmonary function test speech support swallowing symptoms test tests twitches weakness
    • Replies: 12
    • Forum: Could this be ALS?
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