My husbands last ALS clinic visit, his doctor suggested getting Hospice started.
His Vital Capacity number was at 24%. He is using the bipap machine when home more and of course all night for sleeping.
The doctor said Hospice is very helpful and not just for critical times but some...
Hi guys,
I'm only 22 and have very bothersome symptoms. I've had breathing problems that come and go since January of 08. it seems to get worse some weeks and a lot better others. I had the flu really bad, the worst I can remember (very high fever for 5 days) the end of february. My musle...
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Since I'm new to this forum, I would like to give my story up to now and hopefully it won't be too long. First of all I want to make it clear I'm not looking for sympathy and on the other hand, by no means do I mean to be bragging about anything that I say. To the best of my knowledge, it all...
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I’m new, posting on behalf of my father as well as myself. He is 85 years old, with the usual plethora of problems that many people of his age have. He thinks he may have ALS. In fact he has been in hospice care for a partial intestinal obstruction related to surgery for colon cancer decades...
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My mother passed peacefully in her sleep Oct 23, which I am very thankful. Mom had been declining fairly gradually until the last week, and then things just went fast forward. Mom never really had any breathing problems - at least not until the last week and that was mainly due to secretions...
Hi my name is Gina and i am fairly new to this site.My husband is in the late stages of ALS with severe breathing problems being of the primary concern.My sisters best friend whom has also become a friend of mine since her husband was diagnosed with cancer three months ago just lost her husband...
I know this has been covered a lot in the forum, but I have a few questions for those who have been having breathing difficulties due to MND. I have not been diagnosed with ALS and most likely do not have it, but I do have motor nerve involvement, confirmed by 6 EMGs and 3 neurologists (DO, ALS...
My PLS moving into ALS is being put on hold till December.
We had a bathroom that I only use that the pee trap was installed on the wrong side of the tub during a remodel and I was breathing directly in from the septic tank through my over flow vent in to the tub. It was Hydrogen Sulphide...
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I posted a few months ago on this site, but I have a little more information and worsened symptoms, so I just wanted to hear other people's experience with ALS/MNDs. I had several debilitating symptoms that started 3 years ago before the motor nerve involvement, but I won't go into detail for...
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I am new to the group and have some questions. I am a Caregiver to my Aunt who has been diagnosed with MS however after reading the symptoms of ALS I wonder if she was misdiagnosed? She is in a wheelchair, has breathing problems at night while sleeping, muscle weakness, attophy in her legs real...